I legit want to break down, crying in the fetal position, due to how much pain I am in tonight. My curve is sensitive to the touch and making “creaking” noises. My pain meds don’t seem to even dull the pain anymore.
The CT scan needs to hurry and done (found out today that Medicaid approved, so now just to wait to be put on schedule UGH!) So I can get this surgery and get back to a semi-normal life like I had before all this pain!
#ScoliosisProbs #KyphosisProbs #Humpback #HunchbackGirl #TwistedSister #TwistedPretzel #PretzelGirl #CurvyGirl #Curvyinwrongplaces #EhlersDanlosSyndrome #EDS #ZebraGirl #SpinalFusion #BrokenRods #NeedRevisionSurgery
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Published by jamiesjourney0591
My name is Jamie Cormier. I am 31 years old and from a small town in Louisiana. I was born 2 months premature and have many disabilities including but not limited to: Marfans Syndrome, Kyphosis/Scoliosis, Wolf Parkinson White Syndrome (had an ablation to correct it), symptoms of Sleep Apnea, Tachycardia, symptoms of IBS, anxiety/depression, etc.
I am currently on pain meds and living with Chronic pain due to multiple broken rods in my spine.
I was in college for a bachelors degree (I was aiming for education-special education, but I want to work with young adults and not necessarily be in the classroom- advocate, so my advisor suggested getting in touch with my connections of different special needs advocates and organizations, and pursue a degree in General Studies instead due to my chronic pain and struggles with Praxis certification).
I love creative writing, spending time with my family and friends, loving on my pets, and trying to enjoy and have fun when I can- even if its just playing with my makeup, games on my ipad, or just watching cartoons/movies. I am pretty immature and can get in touch with my inner kid real easily. I still like dolls, barbies, dress up, etc.
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