peeks into my life dealing with everyday life and obstacles as well as obstacles of dealing with disabilities and accessibility obstacles, Chronic Pain due to broken spinal rods, living on pain medications, dealing with anxiety/depression, experiencing the newness of love, and fighting for my right to live and love my life in an ableist society.
A week ago, July 23-24, David and I went to Bay St Louis Mississippi to go hang out with my “hitler of the respiratory department,” friend Marcela Spraul from St Louis, Missouri.
Marcela and I got close while I was at Shriners Hospital back in 2012. She has become like an older sister/ second mama to me. She called and told me they’d be in Bay St Louis and I immediately googled the directions. It was only 2 hours and 50 minutes from my house, Easy! Way better than the usual 10-12 hours it takes to see her; of course, I am gonna make the trek to go out and see her.
We had a lot of fun and I enjoyed catching up. and I will be seeing her again in September for my checkup appointment in St Louis. They offered to host us so we don’t have to spend money on hotel- Awww! ❤ I love Marcela, even if the beginning of our relationship was a bit rocky! LMAO.
My name is Jamie Cormier. I am 31 years old and from a small town in Louisiana. I was born 2 months premature and have many disabilities including but not limited to: Marfans Syndrome, Kyphosis/Scoliosis, Wolf Parkinson White Syndrome (had an ablation to correct it), symptoms of Sleep Apnea, Tachycardia, symptoms of IBS, anxiety/depression, etc.
I am currently on pain meds and living with Chronic pain due to multiple broken rods in my spine.
I was in college for a bachelors degree (I was aiming for education-special education, but I want to work with young adults and not necessarily be in the classroom- advocate, so my advisor suggested getting in touch with my connections of different special needs advocates and organizations, and pursue a degree in General Studies instead due to my chronic pain and struggles with Praxis certification).
I love creative writing, spending time with my family and friends, loving on my pets, and trying to enjoy and have fun when I can- even if its just playing with my makeup, games on my ipad, or just watching cartoons/movies. I am pretty immature and can get in touch with my inner kid real easily. I still like dolls, barbies, dress up, etc.
View all posts by jamiesjourney0591
Jamie's Twisted Journey 