ADA, Chronic illness, Chronicillness, collagen, Connective Tissue, ConnectiveTissue, Deformity, disabilities, disabled, Disableds, doctor, Doctors, EDS, Ehlers Danlos, Ehlers Danlos Syndrome, EhlersDanlos, EhlersDanlosSyndrome, genes, geneticist, genetics, genetics doctor, genetics dr, Health, HealthCare, Joint Pain, JointPain, Joints, Joints Pain, Medicaid, medical, Physical Disabilities, rare, rare disabilities, rare disorders, rareDisabilities, rareDisorders, sickness, Special Needs, Spinal Deformity, SpinalDeformity, Spoonie, Spoonies, Syndromes, Zebra, Zebras

EDS Journey: trying to find a genetics dr- Epic fail

Life of someone with EDS/ Ehlers Danlos Syndrome: I have had it all my life, but don’t know the type. I was trying to find a geneticist that accepts Medicaid because I am having more and more joint pain(if it’s not my scoliosis, its joints), and the only way to truly find alternatives and answers besides Pain medications would be knowing the type I have. so I called Medicaid, but they say all that’s in their system is Pediatrics.

God, please send me a sign and some type of help. πŸ€·β€β™€οΈπŸ™πŸ™πŸ™πŸ™πŸ™ #RareDisabilities #EDS #EhlersDanlos #Louisiana #Medicaid #MedicalSystem #Disabled #Disability

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