so here is the latest development in my EDS journey: I am in several Ehlers Danlos groups on Facebook. And they gave me a few names of geneticists who are listed as pediatrics but also do see adult patients with EDS. So I called the one that was named multiple times to confirm that they still do this and they do and also take Medicaid. So I will give their name to my GP on wed. when I go for a medical checkup so they can refer me. #Amen#GodBless
❤ might finally be getting answers .
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Published by jamiesjourney0591
My name is Jamie Cormier. I am 31 years old and from a small town in Louisiana. I was born 2 months premature and have many disabilities including but not limited to: Marfans Syndrome, Kyphosis/Scoliosis, Wolf Parkinson White Syndrome (had an ablation to correct it), symptoms of Sleep Apnea, Tachycardia, symptoms of IBS, anxiety/depression, etc.
I am currently on pain meds and living with Chronic pain due to multiple broken rods in my spine.
I was in college for a bachelors degree (I was aiming for education-special education, but I want to work with young adults and not necessarily be in the classroom- advocate, so my advisor suggested getting in touch with my connections of different special needs advocates and organizations, and pursue a degree in General Studies instead due to my chronic pain and struggles with Praxis certification).
I love creative writing, spending time with my family and friends, loving on my pets, and trying to enjoy and have fun when I can- even if its just playing with my makeup, games on my ipad, or just watching cartoons/movies. I am pretty immature and can get in touch with my inner kid real easily. I still like dolls, barbies, dress up, etc.
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Jamie's Twisted Journey 