peeks into my life dealing with everyday life and obstacles as well as obstacles of dealing with disabilities and accessibility obstacles, Chronic Pain due to broken spinal rods, living on pain medications, dealing with anxiety/depression, experiencing the newness of love, and fighting for my right to live and love my life in an ableist society.
Today was my cardiovascular appointment with my heart doctor and it seemed like a same-old same old- type appointment; which may be true for the doctor, but for me, as I have never really read over my discharge appointment summaries before really, I was shocked.
For some reason I decided to read my discharge summary papers once I got in the car, and according to the papers I had a few problems I was not aware of. I knew that they had said I had a valve that was being watched, but according to the papers, I have “acquired insufficency of aortic valve”, in addition to “non-rheumatic mitral regurgaitation,” as well as Sinus Tachycardia (I knew I had tachycardia but learned what type). I also have WPW (Wolf Parkinson white syndrome, which I knew about already and had a cardiac radiofrequency ablation for it in 2013.)
I scheduled a Echocardiogram for Jan. 15, 2021 at 7:15 a.m. and will get results on Jan 20, 2021 and will update with results when I get them.
But to see those new medical problems (even if they not new in my medical history, they were new for my discovery) were definitely scary and made me realize I need to maybe pay more attention to my medical information. It is my body, I need to be familiar with it.
My name is Jamie Cormier. I am 31 years old and from a small town in Louisiana. I was born 2 months premature and have many disabilities including but not limited to: Marfans Syndrome, Kyphosis/Scoliosis, Wolf Parkinson White Syndrome (had an ablation to correct it), symptoms of Sleep Apnea, Tachycardia, symptoms of IBS, anxiety/depression, etc.
I am currently on pain meds and living with Chronic pain due to multiple broken rods in my spine.
I was in college for a bachelors degree (I was aiming for education-special education, but I want to work with young adults and not necessarily be in the classroom- advocate, so my advisor suggested getting in touch with my connections of different special needs advocates and organizations, and pursue a degree in General Studies instead due to my chronic pain and struggles with Praxis certification).
I love creative writing, spending time with my family and friends, loving on my pets, and trying to enjoy and have fun when I can- even if its just playing with my makeup, games on my ipad, or just watching cartoons/movies. I am pretty immature and can get in touch with my inner kid real easily. I still like dolls, barbies, dress up, etc.
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