peeks into my life dealing with everyday life and obstacles as well as obstacles of dealing with disabilities and accessibility obstacles, Chronic Pain due to broken spinal rods, living on pain medications, dealing with anxiety/depression, experiencing the newness of love, and fighting for my right to live and love my life in an ableist society.
Talk about turning my world upside down!! LMAO..30 years thinking I had one diagnosis ( Ehlers Danlos syndrome).. Come to find out it’s a different connective tissue disorder, Marfan syndrome. LMAO 🤣🤣
My life is never dull.. it’s a roller coaster.. another loop de loop, turn in my life lol 😆 I just got the diagnosis from the genetic testing, today!!! I am still in shock..30 years of lies! LMAO.
My name is Jamie Cormier. I am 31 years old and from a small town in Louisiana. I was born 2 months premature and have many disabilities including but not limited to: Marfans Syndrome, Kyphosis/Scoliosis, Wolf Parkinson White Syndrome (had an ablation to correct it), symptoms of Sleep Apnea, Tachycardia, symptoms of IBS, anxiety/depression, etc.
I am currently on pain meds and living with Chronic pain due to multiple broken rods in my spine.
I was in college for a bachelors degree (I was aiming for education-special education, but I want to work with young adults and not necessarily be in the classroom- advocate, so my advisor suggested getting in touch with my connections of different special needs advocates and organizations, and pursue a degree in General Studies instead due to my chronic pain and struggles with Praxis certification).
I love creative writing, spending time with my family and friends, loving on my pets, and trying to enjoy and have fun when I can- even if its just playing with my makeup, games on my ipad, or just watching cartoons/movies. I am pretty immature and can get in touch with my inner kid real easily. I still like dolls, barbies, dress up, etc.
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Jamie's Twisted Journey 