Category: genetics

ADA, Adult, adulthood, Adulting, Connective Tissue, ConnectiveTissue, Deformity, Differently Abled, DifferentlyAbled, disabilities, disabled, Disableds, disorder, disorders, doctor, Doctors, EDS, Ehlers Danlos, Ehlers Danlos Syndrome, EhlersDanlos, EhlersDanlosSyndrome, genes, geneticist, genetics, genetics doctor, genetics dr, Handicaps, Health, hospitals, illness, Joint Pain, JointPain, Joints, Joints Pain, Kyphosis, Life, Medicaid, medical, Physical Disabilities, rare, rare disabilities, rare disorders, rareDisabilities, rareDisorders, Scoliosis, Special Needs, Spinal Deformity, Spinal Fusions, SpinalDeformity, SpinalFusions, Spine, Spoonie, Spoonies, story, Syndromes, Uncategorized, Zebra, Zebras

EDS Journey: found a possible doctor??!

jamiesjourney0591

so here is the latest development in my EDS journey: I am in several Ehlers Danlos groups on Facebook. And they gave me a few names of geneticists who are listed as pediatrics but also do see adult patients with EDS. So I called the one that was named multiple times to confirm that they still do this and they do and also take Medicaid. So I will give their name to my GP on wed. when I go for a medical checkup so they can refer me. #Amen#GodBless❤ might finally be getting answers .

ADA, Chronic illness, Chronicillness, collagen, Connective Tissue, ConnectiveTissue, Deformity, disabilities, disabled, Disableds, doctor, Doctors, EDS, Ehlers Danlos, Ehlers Danlos Syndrome, EhlersDanlos, EhlersDanlosSyndrome, genes, geneticist, genetics, genetics doctor, genetics dr, Health, HealthCare, Joint Pain, JointPain, Joints, Joints Pain, Medicaid, medical, Physical Disabilities, rare, rare disabilities, rare disorders, rareDisabilities, rareDisorders, sickness, Special Needs, Spinal Deformity, SpinalDeformity, Spoonie, Spoonies, Syndromes, Zebra, Zebras

EDS Journey: trying to find a genetics dr- Epic fail

jamiesjourney0591

Life of someone with EDS/ Ehlers Danlos Syndrome: I have had it all my life, but don’t know the type. I was trying to find a geneticist that accepts Medicaid because I am having more and more joint pain(if it’s not my scoliosis, its joints), and the only way to truly find alternatives and answers besides Pain medications would be knowing the type I have. so I called Medicaid, but they say all that’s in their system is Pediatrics.

God, please send me a sign and some type of help. 🤷‍♀️🙏🙏🙏🙏🙏 #RareDisabilities #EDS #EhlersDanlos #Louisiana #Medicaid #MedicalSystem #Disabled #Disability