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Disability update- Scoliosis Update: St Louis check up appointment

 On September 22, 2020, I had my appointment with Dr. M Kelly at CAM Center in St Louis, Missouri. He didn’t seem too worried about the broken rod at this time. the rod is broke but it’s still got some support from other rods and such, we not doing anything at this time (if rod gets worse or something, then we’ll see our options. Not really wanting to go back in at this time because the wound I had previously s finally behaved and “quiet.” So he’s like “let the sleeping dog lie,” to which I translated “don’t poke the bear” and he agreed.The “rod pain.” Is not rod bc the broken rod is on other side of my back, but it’s probably “muscles” or nerve pain instead. Which thinking back after my surgery in 2012 I did have similar pain but this round feels worse than last time. Idk. Maybe my fall made it worse..idk. 🤷‍♀️🤷‍♀️🤷‍♀️ anyway that’s the update.

other than that it was a great visit. I spent over a week (September 20- September 29) at a friend’s house; her family tried to convince us to move out there. LOL.

In other news, even though the infection has cleared up in my back, they still want me on infection meds. Also in other news, the rib pain that used to plague me before I had that wound issue start (after 2012 until the wound started,) is back. UGH. wish that would’ve stayed away.

Still no word from the geneticist about an appointment for my EDS- UGH!

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disability journey: Broken rods – facing my parents and such…

 As we are aware, I had re-broke my spinal fusion rods and was dreading facing my parents about it. This weekend, my parents came in off the truck. As soon as they saw me, Dad asked “what happened to your forehead” because that was the first thing he noticed. “Well, you see, there was a incident in the backyard on the steps. I fell…and re-broke my rods.” They didn’t look happy, but didn’t say anything, later they mellowed out and we joked about it. Then I gave them some candy bars I had bought at the store on Thursday after the incident, before they came in, with the joke to David, “I’ll get their favorite candy bars so when I deliver the bad news about my rods, it will be less of a blow…Like…’look, I got yall favorite candy, oh by the way, my rods are re-broke. Oh just eat your candy bars before you reply.” hahaha. To which I recounted that story to them and they laughed. I am so lucky to have understanding and supportive parents with good senses of humor. 🙂 #Blessed. 

I also sent the Xrays to Dr. Kelly on friday through “snail mail” with post office saying it should be delivered/recieved on monday. So I will call monday to tell his office and hopefully by tuesday or wed, I will have some news on what Dr. Kelly had to say. I also hope I hear from the genetics doctor soon as well. 

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Disability Journey: Broken rods again..What does it mean?

As we know, my rods are broken once again, but until Dr. Kelly receives my Xrays from OGH and I hear back from him and go to my appointment in Septemeber, we do not know what will happen. Will I have another surgery? More than likely- I mean my rods can’t stay broken. What does that mean?  Well, more than likely it means another surgery, recovery all over again, push back college again, postpone the wedding again, having to raise money or apply for hardship case again since St Louis Barnes Jewish doesn’t take out of state Medicaid, and the talks of David and I starting a Food truck business will also be put on the backburner. 

I am tired of the rods breaking; this is the 2nd time! Maybe I should just put myself in a plastic bubble or “ground myself” permanently into a wheelchair and say “Fuck walking” – maybe I won’t injure myself, since I can’t seem to not be a klutz. I don’t know what the answer is. 

I am just dreading it. Dreading facing my parents about it, dreading facing doctor kelly about it, I know accidents happen, but I feel like I am a disappointment and let everyone down even though I did everything right this time: I didn’t get on inflatables again (I learned my lesson from last time), I was cautious when picking up on my niece or stuff, I was cautious and didn’t bend- instead I squatted or got on my hands and knees,) and yet, I still broke my rods. I wonder if my Ehlers Danlos has something to do with it? Hmm. Guess that’s a question for when I do see that EDS genetics doctor. 

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Beignet: Grooming incident and photo modeling

Yesterday, Wed March 18, 2020, while I was using the “dog shaver” to see about Beignet’s loose dog hair, she was more hyper than usual and wouldn’t keep still. Long story short, she moved while I was going down her back with it, and when she moved, I slipped and got the back of one of her legs- a small cut on her leg and bleeding a little. We went inside, I got bacitracin, gauze, bandaid, and medical tape and bandaged her up. I walked away to put the stuff away and come back to find she had already chewed halfway through the tape, gauze, and bandaid. 

Later that night, I decided to practice my photography skills and used Beignet as my model and uploaded them to her Instagram to try to build up her following and add to her content. I am trying to get her some brand deals; I am almost like those moms who push their kids into casting calls. ugh. Not good, but I can’t help it, she is just so cute and a pretty dog and so photogenic. 

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Beignet: Brushed, combed, and playtime!

Today, Beignet was itching and scratching alot so I decided to take her outside and give her a good brush/comb out. I also found one of those dog hair shaver things that she used to be scared of when she was a puppy; good news, she is no longer scared of it, and it got alot of her loose hair off. She’d probably look alot prettier if she had a bath, maybe David and I will bathe her this weekend. I think I will keep up with her daily grooming though, it seems to be helping her alot.

After an hour or two of grooming outside, we came back in and decided to play. She has so many toys that sometimes it is so hard for her to decide what toy she definitely wants and will start with one, then leave it alone after i throw it, to go find a different toy! HAHA.

Anyway, it was a pretty chill day, and I guess with the hysteria and panic surrounding CoronaVirus, I will have alot of time to just be at home and spend time with my wonderful furbaby.

BTW, she totally isn’t spoiled (rolls eyes)

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Beignet now on social media

my dog now has instagram (beignet_cormier)

Twitter(@BeignetCormier)

FB Page: Beignet’s Blingy Life

youtube channel: https://www.youtube.com/channel/UCItP4nxr5T4L7VFs6OKSKqg?view_as=subscriber

Blog page: Beignet’s bling life https://beignetsblinglife.blogspot.com/

FB Profile: https://www.facebook.com/beignet.cormier.33

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Beignet: Sweetest best dog in Louisiana- Youtube slideshow video

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Road to Mobility: Beignet training session #2

Today we did some more training with the retrieval of the coke bottle, basic commands, and started “clean up” for her toys so I don’t have to bend down to pick them up.

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Road to Mobility: Beignet Training session #1

Originally I had been training Beignet to be a service dog and eventually with all my pain from broken rods and then surgery recovery, It kind of fell by the way-side, however, I am getting back into it. Today We started training to try to get her to retrieve coke plastic bottle for me (in case I dropped it or something).

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Beignet: Crooked Tails and adorable sleeping positions!

Ever since adopting Beignet, she has always had a distinct feature: her crooked little tail.

At first, seeing it broke my heart, because it’s like “aww she has a disability too!” and I also thought maybe she got it caught in something/ it got infected and had to be removed/ or some heartless monster just decided to cut her tail, but I actually later found out (once I joined some dog groups- especially rescue dogs and foxhounds- which most people think Beignet is) that there is a gene mutation that can cause “Natural bobtail”- an animal’s tail which due to a mutated gene grows unusually short or is missing completely. Finding that out, made me come to appreciate her little special tail so much now.

One thing she does that is so cute and adorable is that when she tries to wag that little nub, her hips wiggle too, and hence why I sometimes call her “wiggle butt,” or “wiggles mcwiggleton.”

She also has the most cutest and adorable sleeping positions!

and Lastly, today, I was in a foxhound group on facebook- asking about if all foxhounds “shed like there is no tomorrow” because Beignet sheds so much that I swifter once a day and by the end of the week, I swear I have enough dog hairs to make a small sweater! it is ridiculous how much she sheds but she also has really bad skin allergies and itching. Poor thing, I have her on a daily antihistamine, special poultry free dog food because we have a suspicion she is allergic to chicken, fish oil on her dog food and just currently started doing coconut oils as well, I brush/comb her once a day(sometimes more if she is really itchy), and we bathe her every 2 weeks (sometimes earlier if again, she is really itchy); and the poor girl still scratches and licks herself, has welts under her fur, has dandruff flakes, and sheds a lot. Anyway, in the group, I asked about shedding badly, and the following screenshot has to be the funniest and best reply ever!

apparently she isn’t shedding dog hair at all, she is losing her powdered sugar! LMAO.