peeks into my life dealing with everyday life and obstacles as well as obstacles of dealing with disabilities and accessibility obstacles, Chronic Pain due to broken spinal rods, living on pain medications, dealing with anxiety/depression, experiencing the newness of love, and fighting for my right to live and love my life in an ableist society.
It’s officially December and I am not in the Christmas spirit like usual. Usually, I would be going all out with decorations and such, but not this year- maybe lights and that’s it. Due to moving in Jan. We don’t want to have to haul extra stuff than what is needed. Plus, it will be the first Christmas without Mommie, Mr. Mike James, my cousin Racheal Mary Meche, Ms. Nancy Moticka
It has been too much death in one year; not to mention all the other I care about who isn’t around anymore either- My other grandmother (maw), and then one of the most influential women in my life, Mrs. Evelyn Zehner, “Mrs. Z” from Camp we can do. It’s just so hard… I know there are worse people off, but for some reason I just cannot get into the spirit yet this year. Is it because of not decorating much this year, the financial stresses and having to ask mom to loan money for us to buy Christmas gifts until David can find a job? I don’t know. Just tired of always being miserable. I can’t remember the last time I was sincerely happy for more than a few hours.
😥 I don’t know, I just been depressed all day today. Hopefully, I can get out of this funk. Prayers appreciated. I hate it when I get depression.
so the latest on my back: I saw dr. Kelly today. He is very optimistic. His plan is if my rods aren’t infected (we did labs), he says he will just open the incision scar where my rods are broken at, clean up my wound, and add in some “dominoes” and add in some extender rods.” It will be “Simple and sweet,” as he put it.
:p The date is the same, August 14, but I need to be here by the 12th because I need to go to get my central line valve put in on the 13th. If he does what he wants, “simple and sweet,” he doesn’t think I will have as many complications like I did last time bc last time I had broken ribs and pneumonia from that which led to trach, blah blah blah…the framework already there, this is just some maintenance repair! LMAO. But whatever God’s will, will be done.
As you all are aware by now, yesterday I went to Vidalia for a pain management appointment and found out that I have Osteoporosis forming. Today, I called my Surgeon in St Louis, Missouri, to find out if it would affect my surgery.
Missouri office: Can they fax it to the results to us?
Me: I’ll call and ask.
Vidalia office: we need a release, however, we can send the results to your referring doctor.
Referring Dr office: Oh, we can’t fax other doctors’ records.
*Facepalms* This is why the medical field and disabilities suck. Can’t get help, what so ever. You are a freaking Dr. Office, do your job!
I called the St Louis office back and explained the situation and they are going to call Vidalia and see if there is something they can do.
We had nothing left in the fridge and around noon I started to get hungry. I quickly seasoned up some chicken breasts and cut them into bite size pieces, put some oil in the skillet and grilled/sauteed some chicken despite already having planned a meal for supper with chicken- Baked Chicken Parmesan. Oh well. David didn’t complain and both meals came out good. I’ll probably defrost some ground meat to make tacos Tuesday night.
Now, my joints ache and everything hurts, not just from being on my feet cooking, but also we have some rain predicted for later and that affects my body as well. Just another average day in my life.
Being a “Cajun” girl from central Louisiana, I have a passion for cooking, but sadly I cannot do it often because due to Chronic pain, I cannot stay on my feet long or I suffer extreme chronic back pain afterward.
Today, I was tired of using my crockpot or “baking” meals and David has been cooking for the last few months. I remembered I enjoyed chicken in a mango chutney but the recipe I had eaten last time was with stir-fry and I don’t know how to do stir fry (and don’t have a wok anyway,) so I improvised and made it into a gravy. The first thing I did was cut the chicken breast into bite size pieces and seasoned/marinated them in a mixture of Savory, Tony Chachere’s, Cayenne pepper, White pepper, black pepper, Old Bay Seasoning, ground mustard and liquid mustard (Dijon), some squirt of honey, some brown sugar, a tiny little “spill” of cola-soda, and some minced garlic.
Next, I browned the chicken on the stove. While the chicken was browning, I cut up onions and green bell pepper. Once the chicken was browned, I added in onions, green bell pepper, and some roasted red bell pepper that I had in the fridge, and let it all simmer together.
Once the onions and bell pepper was softened in with the browned chicken, I added in the mango chutney and let it all simmer together to form a thick gravy; however, it wasn’t thickening to how I wanted, so I added in a little pinch of flour.
I followed no recipe. I never follow a recipe. When I feel something would be good in a dish, I just follow my gut instincts. It is like I have a “sixth sense” for cooking. I enjoy it and it relaxes me. To me it is an artistic expression, however, I sure could do without the back aching afterward from being on my feet so long. It’s a whole pain pill kind of night, but the meal was so worth it.
So a lot of People have no issues with Disney movies or children’s programming promoting heterosexual “need a man/prince,” mentality, but as soon as something airs with homosexual relations, everyone that is crazy traditional religious is all up in arms and “grab your pitchforks and torches, burn the blasphemers.” It’s 2019 people, there should be no more homophobia, transphobia, disability-phobia, dwarf-phobia, racism, sexist ideas, or any of that stuff. The old testament was before Jesus’ time, the new testament was around Jesus teachings but actually written by “followers” of Jesus. Who knows, they could have thrown in their own views or maybe when it was translated from Hebrew or whatever language, something got “lost in translation.” I mean, think about it, Jesus hung out with the sinners, prostitutes, the “scum of the scum,” as people viewed them. He taught love and acceptance. Not trying to change their ways by saying “You’re GOING TO HELL!” he did it through love, he made them want to turn from their sins, not try to force it.
Today there was an article on WAFB Channel 9 about a My Little Pony: Friendship is Magic Episode that featured the character, Scootaloo, being looked after by her same-sex couple aunts; Aunt Holiday and Aunt Lofty. First, it was Arthur about Mr. Ratburn and a gay wedding, and now this. People were all pissed about both “It isn’t appropriate for children,” “Protect our children,” “Satan’s agenda,” blah blah blah.
I may have been brought up Catholic all my life, and I still love my religion, faith, and God almighty, but the organization has its own faults ..*Cough* *Cough* Pedo Priests getting frisky with the altar boys or whatever. We are all human, we all have faults, we all sin.
But the media are doing things like this to try to be relatable and give representation to minorities and their families: Homosexuals(The child or the parents), bi-racial (parents or child), single-parent households, being raised by someone other than parents (Grandparents/uncles/aunts/cousins, adopted, orphaned, fostered, etc.), transsexuals (parents or child), those with disabilities. With more representation and showing that these people aren’t weirdos or “freaks,” and that they are just like everyone else and shouldn’t be targeted, harassed, bullied, etc. over stuff they can’t control.
Since a lot of parents tend to shove their ideas and beliefs down their children’s throats, and not teach their kids to not be little assholes, its up to society to also push in some compassion and empathy because there are many walks of life and no one should be bullied to the point of trauma, depression, homicide, or suicide.
My grandmother, Ruby “mommie” Cormier died on Sunday, June 9, 2019; one day before her 89th birthday. I took it hard at first because I had been wanting to do a Youtube tag video with her, but I kept hurting a lot and couldn’t get out there to do it with her, and now I can’t do it because she is gone. I was also upset, because I had always planned for her to be present at my future wedding, when I got all my college degrees, to see me start my own career and chase my dreams, and maybe even eventually see me start a family; well now, she won’t be around for any of those events, not physically anyway. I came to realize though, she is in a better place, she is no longer hurting or suffering from dementia or diabetes. She could truly start living a fun life again.
Yesterday, Monday, June 10, 2019, in honor of her birthday, a lot of the family went out to eat at Pizza Village (one place she loved to eat), Mom made a chocolate cake, and we shared lots of memories, laughter, and of course cake. We even sang “Happy Birthday,” and the other patrons of the restaurant probably thought we were a bunch of weirdos. The younger kids, her great-grand kids, wanted to do a balloon release and so we “sent the balloons up to heaven.”
Today, Tuesday, June 11, 2019, the “wake,” at the funeral home was from 4-8 pm. with a rosary at 5 p.m. It really wasn’t that hard on me today; sure, I got a little choked up during the rosary, but other than that, Again, we shared lots of memories and laughter between families and friends. My younger cousin, Hadley, (4 years old) kept “arresting” my dad and putting him in “han-cuffs.” Adorable kids are always a good distraction from the pain of grieving.
Me: Hadley, you arresting uncle ronald? HK: Uh-huh Me: you know thats my dad, right? HK: *Looked worried I was gonna tell her to leave him alone* Me: Good Job, Get him. Give me high-five! she just giggled and gave me “five” (She’s definitely come a long way since Easter two years ago when she would run away from me! lol)
More than likely tomorrow will be the real challenge when they close that casket and we have to leave her. I am gonna try to read what I wrote the other day in dedication to her when she first died…I might get choked up but I will try to do it.
I found an angel pin that I put on her to be buried with, and a picture of me, her, and david from Christmas 2017 when David and I first started dating. Also being buried is a toy cat that supposed to represent “Socks” (her cat she had before she went in the nursing home), and some pictures of her, Hadley, and Hadley’s older brother “Braylon”. Those kids are young, but I hope they know how much their great-grandmother loved them as much as they loved her. <3<3
anyway, good night. Thoughts and prayers with the family for tomorrow is appreciated.