The latest “Twisted Tale” in my journey called life; Surgery coming up fast!!!!

so the latest on my back: I saw dr. Kelly today. He is very optimistic. His plan is if my rods aren’t infected (we did labs), he says he will just open the incision scar where my rods are broken at, clean up my wound, and add in some “dominoes” and add in some extender rods.” It will be “Simple and sweet,” as he put it. 

:p The date is the same, August 14, but I need to be here by the 12th because I need to go to get my central line valve put in on the 13th. If he does what he wants, “simple and sweet,” he doesn’t think I will have as many complications like I did last time bc last time I had broken ribs and pneumonia from that which led to trach, blah blah blah…the framework already there, this is just some maintenance repair! LMAO. 
But whatever God’s will, will be done. 

Share my go fund me please!!! https://www.gofundme.com/jamie-has-broken-rods-and-other-problems-occurring

Medical Headache, incompetence, and idiotic rules

As you all are aware by now, yesterday I went to Vidalia for a pain management appointment and found out that I have Osteoporosis forming. Today, I called my Surgeon in St Louis, Missouri, to find out if it would affect my surgery.

Missouri office: Can they fax it to the results to us?

Me: I’ll call and ask.

Vidalia office: we need a release, however, we can send the results to your referring doctor.

Me: Okay.

Referring Dr office: Oh, we can’t fax other doctors’ records.

*Facepalms* This is why the medical field and disabilities suck. Can’t get help, what so ever. You are a freaking Dr. Office, do your job!

I called the St Louis office back and explained the situation and they are going to call Vidalia and see if there is something they can do.

Passion for cooking: today’s meals

We had nothing left in the fridge and around noon I started to get hungry. I quickly seasoned up some chicken breasts and cut them into bite size pieces, put some oil in the skillet and grilled/sauteed some chicken despite already having planned a meal for supper with chicken- Baked Chicken Parmesan. Oh well. David didn’t complain and both meals came out good. I’ll probably defrost some ground meat to make tacos Tuesday night. 

Now, my joints ache and everything hurts, not just from being on my feet cooking, but also we have some rain predicted for later and that affects my body as well.  Just another average day in my life. 

so disgusted and embarrassed by this! Boycotting my little pony? its 2019..ugh

So a lot of People have no issues with Disney movies or children’s programming promoting heterosexual “need a man/prince,” mentality, but as soon as something airs with homosexual relations, everyone that is crazy traditional religious is all up in arms and “grab your pitchforks and torches, burn the blasphemers.” It’s 2019 people, there should be no more homophobia, transphobia, disability-phobia, dwarf-phobia, racism, sexist ideas, or any of that stuff. The old testament was before Jesus’ time, the new testament was around Jesus teachings but actually written by “followers” of Jesus. Who knows, they could have thrown in their own views or maybe when it was translated from Hebrew or whatever language, something got “lost in translation.” I mean, think about it, Jesus hung out with the sinners, prostitutes, the “scum of the scum,” as people viewed them. He taught love and acceptance. Not trying to change their ways by saying “You’re  GOING TO HELL!” he did it through love, he made them want to turn from their sins, not try to force it. 

Today there was an article on WAFB Channel 9 about a My Little Pony: Friendship is Magic Episode that featured the character, Scootaloo, being looked after by her same-sex couple aunts; Aunt Holiday and Aunt Lofty. First, it was Arthur about Mr. Ratburn and a gay wedding, and now this. People were all pissed about both “It isn’t appropriate for children,” “Protect our children,” “Satan’s agenda,” blah blah blah. 

I may have been brought up Catholic all my life, and I still love my religion, faith, and God almighty, but the organization has its own faults ..*Cough* *Cough* Pedo Priests getting frisky with the altar boys or whatever. We are all human, we all have faults, we all sin. 

But the media are doing things like this to try to be relatable and give representation to minorities and their families: Homosexuals(The child or the parents), bi-racial (parents or child), single-parent households, being raised by someone other than parents (Grandparents/uncles/aunts/cousins, adopted, orphaned, fostered, etc.), transsexuals (parents or child), those with disabilities. With more representation and showing that these people aren’t weirdos or “freaks,” and that they are just like everyone else and shouldn’t be targeted, harassed, bullied, etc. over stuff they can’t control. 


Since a lot of parents tend to shove their ideas and beliefs down their children’s throats, and not teach their kids to not be little assholes, its up to society to also push in some compassion and empathy because there are many walks of life and no one should be bullied to the point of trauma, depression, homicide, or suicide.  

https://www.wafb.com/news/national/2019/06/12/my-little-pony-brings-same-sex-couple-latest-episode/?fbclid=IwAR0aVMBrRNi39ZEKJIbFNmv_0w6LMevvOF5OHdjuUbKScVpgnqCnhK8GPd8

latest update. Remembering Mommie’s birthday, the wake, and the funeral.

My grandmother, Ruby “mommie” Cormier died on Sunday, June 9, 2019; one day before her 89th birthday. I took it hard at first because I had been wanting to do a Youtube tag video with her, but I kept hurting a lot and couldn’t get out there to do it with her, and now I can’t do it because she is gone. I was also upset, because I had always planned for her to be present at my future wedding, when I got all my college degrees, to see me start my own career and chase my dreams, and maybe even eventually see me start a family; well now, she won’t be around for any of those events, not physically anyway. I came to realize though, she is in a better place, she is no longer hurting or suffering from dementia or diabetes. She could truly start living a fun life again.

Yesterday, Monday, June 10, 2019, in honor of her birthday, a lot of the family went out to eat at Pizza Village (one place she loved to eat), Mom made a chocolate cake, and we shared lots of memories, laughter, and of course cake. We even sang “Happy Birthday,” and the other patrons of the restaurant probably thought we were a bunch of weirdos. The younger kids, her great-grand kids, wanted to do a balloon release and so we “sent the balloons up to heaven.”

Today, Tuesday, June 11, 2019, the “wake,” at the funeral home was from 4-8 pm. with a rosary at 5 p.m. It really wasn’t that hard on me today; sure, I got a little choked up during the rosary, but other than that, Again, we shared lots of memories and laughter between families and friends. My younger cousin, Hadley, (4 years old) kept “arresting” my dad and putting him in “han-cuffs.” Adorable kids are always a good distraction from the pain of grieving.

Me: Hadley, you arresting uncle ronald? 
HK: Uh-huh
Me: you know thats my dad, right? 
HK: *Looked worried I was gonna tell her to leave him alone* 
Me: Good Job, Get him. Give me high-five! 
she just giggled and gave me “five” 
(She’s definitely come a long way since Easter two years ago when she would run away from me! lol)

More than likely tomorrow will be the real challenge when they close that casket and we have to leave her. I am gonna try to read what I wrote the other day in dedication to her when she first died…I might get choked up but I will try to do it.

I found an angel pin that I put on her to be buried with, and a picture of me, her, and david from Christmas 2017 when David and I first started dating. Also being buried is a toy cat that supposed to represent “Socks” (her cat she had before she went in the nursing home), and some pictures of her, Hadley, and Hadley’s older brother “Braylon”. Those kids are young, but I hope they know how much their great-grandmother loved them as much as they loved her. <3<3

anyway, good night. Thoughts and prayers with the family for tomorrow is appreciated.

another sleepless night; chronic pain and tears.

A bad storm passed through Louisiana this week so it has been quite a bit of sleepless nights for me lately and then add in the dreaded once a month bullshit us females have to deal with, adding in stress, anxiety, hormones, emotional roller coaster, all that (sarcastic tone) “fun.” Tonight, I tossed and turned for 2 hours while my fiance’ just lays next to me snoring; sure, I could wake him up and make him suffer with me, but that is selfish plus he works to provide for us, so I guess he needs the sleep more than I do, but it sure would be nice to be able to talk these things out instead of blogging them.

I have a mattress that can elevate the head, it helps with migraines and sometimes my upper back (then I gotta deal with my lower back and hips hurting), but tonight my upper back is hurting and I am not even gonna use the head-elevation because lately it has been making my fiance’ back hurt in the morning; which sent me down the dreaded “rabbit hole” of the uncertainty of a future together: What if I become bed-ridden, what if he has to help me with everything more than he does now? That isn’t what he signed on for! It isn’t fair to him. I know he made a commitment to me and he constantly reminds me of it anytime I start crying and freaking out about how much pain I am in and the fears that sends into me about how uncertain my life and future are; I just don’t want him to have regrets or resentments. I love him, I really do, but when these fears kick in, I go into flight mode and tend to push him away, thinking I am saving him from being stuck in a sucky future with me and my damn disability. How can I expect him to accept it and what it does to me, if I cant even accept it completely myself?

If there was a pill created to make me “normal,” like everyone else in society, I would take it! Even though I also feel like having my disability has made me a well-rounded, wise, empathetic, compassionate, supportive, loyal, passionate person. Does it make me a bad person? Why is it I can be a support system and cheerleader for others with disabilities but yet I cant even accept myself completely? Does it make me a hypocrite? Maybe its just the pain talking; well the pain and the damn devil. I need to really work on myself and loving myself for me; whole-y and completely. Maybe after my surgery to fix my rods, maybe my pain will be better, and I can start being happy again. One can only hope.