peeks into my life dealing with everyday life and obstacles as well as obstacles of dealing with disabilities and accessibility obstacles, Chronic Pain due to broken spinal rods, living on pain medications, dealing with anxiety/depression, experiencing the newness of love, and fighting for my right to live and love my life in an ableist society.
My fiance and I had made plans to originally go to another parade this weekend, however upon waking up, my body decided to ruin that: sinus allergies, major migraines, back pain, and spasms; However, I found a way to not let it keep me down.
Sure, we didn’t go to the parade, but instead of moping and letting it ruin my day, I found a fun way to entertain myself; and all I needed was some mardi gras beads and my dog.
“How can that possibly be more fun than going out and socializing at a parade?” Well, as much fun as a parade is with the socializing and being with people, I wouldn’t have really enjoyed it because I was feeling so miserable with my health; but here at home in the warmth, I can have my own parade. Just me and my dog, who probably thought her mom had completely lost her mind. haha!
I took some beads and put on my pandora music and started dancing (yes I was hurting, but just swaying side to side and side-stepping, isn’t much to hurt), and took some beads and started throwing them around- once they landed on the floor, Beignet, would go over and sniff at them.
After throwing a few beads, I then took some and put them on Beignet like she had caught them. However, I think her favorite was when I brought out a light-up rubber boomerang I had gotten at the Rio Parade last weekend; In Hinds sight, I should’ve known she would love this item because she LOVES her frisbees! As soon as I pulled out the boomerang, that little nub of her crooked tail started wagging and her butt then began its “wiggle”. I tossed it to the couch a few times, but I didn’t wanna risk breaking stuff in the house, so we went into the backyard for a couple of tosses until I got too cold and was like “Okay B, Time to go in. We can play with the boomerang more tomorrow when the sun is out and hopefully warmer.”
As soon as we came in, I put the boomerang out of reach so that she wouldn’t destroy it (Power Chewer problems Lol) and she just sat near where I had put it out of reach and whined and whined until she realized I was not gonna relent and she went lay down and is now fast asleep.
Sure, I could’ve had some fun at the parade maybe, but I had a lot of fun here- just me, my fiance (who after helping me do some housework and he did yard work, is now enjoying his free time playing his video games), the cats outside in their warm (lighted) cat box/makeshift house, and Beignet- whose “mom” uses her for her own entertainment-but she knows I love her. ❤
Anyway, hope everyone else has a great rest of their weekend and remember: Don’t let life keep you down. Find a little fun in anything at all, smile, and that can turn everything around!
I have always had a habit of biting my fingernails ever since I was a small child, and when it came to scabs I would also pick my scabs (a lovely habit I picked up from my dad), but as of late (the last few years) I started pulling skin that cracks and peels around my fingernails, my fingernails when they crack/chip, and as of late I had a scab on my forehead that I picked at to the point that it is becoming a deep open wound. I had to put Bacitracin on it to keep it from getting infected, but when I am “bored” or my anxiety acts up or just my OCD saying “hey you have a wound on your head, pick at it,” there goes my fingers starting to pull at it again. I really wish I could stop this. I need psychiatric help. The only thing that helps distract me is my wonderful dog, Beignet.
Being from Louisiana, I know a good party; and Mardi Gras season is not just about partying before Ash Wed. and lent season; No, not at all: to a child, Mardi Gras is a magical time where beads and candy are thrown from parade floats, getting tons of junk from vendors peddling carts that you don’t need but want, music and bands that you clap and dance around to. When you are a pre-teen and think you know everything, you go off by yourself with your friends (at least in Lafayette daytime parades). As an adult, this is not nearly as fun because you get pelted right in the face, (whereas when you are a child, the adults catch the beads, and if you were as spoiled a child as I was, many adults would catch and give beads to me.), when you have whiney kids begging and crying for the junk on the carts (karma is a butt LOL) or because they didn’t get any “catches” from one float or any “good catches” like toys and such (and for some strange reason, at least in my case, the older I get, the worse my anxiety and nerves get). Then there is also the yummy sugary goodness of the season also known as King Cake! YUM! King Cake is Mana from heaven itself (LOL Just kidding); in all seriousness, King cake is is a ring of twisted cinnamon roll-style dough topped with icing or sugar, usually colored purple, green, and gold (the traditional Mardi Gras colors) with food coloring. King cakes may also be filled with additional foodstuffs- the most common being cream cheese, praline, cinnamon, or strawberry, etc. King cakes also usually put a little plastic baby in the cake to represent baby Jesus; and in Louisiana, the person who finds the baby is required to purchase the next king cake.
Mardi Gras was so much fun for me as a child and I have many humorous stories about it. When I was a young child, Dad worked in Oilfield as a service manager or technician manager at Sola Communications. Sola Comm., as we often called it, would have an area for their employees to pitch a tent (or a few tents) and lay blankets on the ground in front of UL Lafayette’s Maxim Doucet building off of Johnson Street and across from St Mary Street. They would have so much yummy food, mostly BBQ, and chips and such (I had a sensitive stomach so I would usually bring picnic sandwich from home). There was a girl around my age (her dad worked with my dad); I can’t remember her name, but that was my play-friend for the parades: stood together for the parades, catching beads together, when parades weren’t going all (because we were there all day until early evening) we’d play chase or hide and seek from the adults, or we’d go walk down to the “junk on carts” with our money from our parents(She always made sure no one shoved or pushed me by accident, or any other way that I could’ve gotten hurt.) we just had a lot of fun together.
I remember one year specifically; I was in second grade, I believe: A lot of things happened that one year: My brother spray painted my hair green, I got a lot of beads (thanks to Jared, his girlfriend at the time, Dad, and some of Dad’s really tall co-workers). Dad scared the “be-jeepers” out of me, and Mom got so drunk that Dad had to put the child lock on the windows.
I remember we had 3 cans of colored hair spray: Purple, yellow, and green; I wanted purple, but Jared (being the jerk that he was at the time) thought it’d be hilarious to give me green hair instead; I was a brat, so when I saw what he had done, I had a full on meltdown: crying, hitting him, throwing stuff at him, etc. Mom was the same way she is now, “Jamie, it isn’t that big a deal,” (and I agree with her now that I am an adult), but I’ve always been one for being melodramatic about stuff (I’m a girl so of course I’m dramatic!)
Dad always loved to get me “all wound up” and aggravated (I honestly think, he believes that it is his one job in life), but this one year when I was in second grade, he honestly went overboard or maybe he was trying to teach me a lesson, I honestly don’t know; but, anyway, my friend and I were running around playing hide and seek behind the pillars near Maxim Doucet building: I had my back turned and was looking around, Dad somehow snuck up behind me and put his hands over my mouth like he was a kidnapper! (Talk about scary, right?!) I wriggled and kicked and squirmed, crying my eyes out; once he brought me near our spot, he put me down and turned me to face him. I was so upset! I was calling him a jerk and all kinds of stuff. He told me “that is how easy it is for someone to kidnap you! You weren’t even together (talking about me and my friend); separated from each other, makes it a lot easier to kidnap one of y’all!” Let’s just say, after that incident, I never wandered off too far without my friend being next to me.
On the way home that same evening, Dad had to put mom’s windows on Child lock. She had been drinking crown Royal Whiskey all day and was totally drunk! She must have thought she was in a parade or something because next thing we all know, she is throwing beads out of her window, into the tailgates of pickup trucks and pissing other drivers off: and making me cry in the backseat because she is throwing all of “my purple” beads; I didn’t care about the other beads, just don’t throw the purple, momma!
That was such a fun and funny Mardi gras, although going to parades with my godfather, his family, and his friends, is a lot of fun too! We once went to New Orleans for Mardi gras in 2006, right after Hurricanes Katrina and Rita—that was also memorable. We took my grandmother, Maw-Maw Verdine Meche with us, there was this big biker looking dude (later found out he was gay –but I hold no judgments against him about that, LOL) the kids and I were bored waiting for the parades, so we broke some old beads we found on the ground, and took the little ball beads and were throwing them at people; this biker dude played along and soon we were having a broken bead war—us against him and his friends. LOL! Another memory which was probably scary for mom was the fact, I kept wandering off to the front of the barricades (leaving them somewhere in the middle); there was this couple who were Latino heritage I think, and they would give me the beads they caught, along with one of the older grandparents who still could move and dance without breaking a hip, would try to dance with the high school dancers ( I think he was pretty drunk!), but we ended up with a lot of beads and “good throws” that year. Do You want the big stuff? Go to New Orleans for Mardi gras!
We are all from Louisiana, so we all pretty much know how to have a good party; Just have the right food, the right music, cute kids, and lots of drinking and king cake….hell, sometimes, you’d think our party was the parade with the lot of us all dancing! Like we say in Louisiana, Laissez Les Bon temps roulez, which is Cajun French for “Let the good times roll,” and in Louisiana, we do just “dat!”
It’s officially December and I am not in the Christmas spirit like usual. Usually, I would be going all out with decorations and such, but not this year- maybe lights and that’s it. Due to moving in Jan. We don’t want to have to haul extra stuff than what is needed. Plus, it will be the first Christmas without Mommie, Mr. Mike James, my cousin Racheal Mary Meche, Ms. Nancy Moticka
It has been too much death in one year; not to mention all the other I care about who isn’t around anymore either- My other grandmother (maw), and then one of the most influential women in my life, Mrs. Evelyn Zehner, “Mrs. Z” from Camp we can do. It’s just so hard… I know there are worse people off, but for some reason I just cannot get into the spirit yet this year. Is it because of not decorating much this year, the financial stresses and having to ask mom to loan money for us to buy Christmas gifts until David can find a job? I don’t know. Just tired of always being miserable. I can’t remember the last time I was sincerely happy for more than a few hours.
😥 I don’t know, I just been depressed all day today. Hopefully, I can get out of this funk. Prayers appreciated. I hate it when I get depression.
Today was not great of a day except for one little event during the middle of the day. I had gotten a ticket from Build-a-bear for the “Pay your age,” event and was able to take my “future nieces” (older one being 9 years old and the baby, 9 months.) However, earlier that day was not great.
It started by my 9-year-old “future niece,” going to get the mail at my apartment mailbox; I got a letter from St Louis billing department saying that I was “denied,” hardship assistance and didn’t meet the national poverty requirement (how is not having health insurance besides Louisiana Medicaid, and only living on SSI and food stamps, not poverty?) – side note: called and talked to someone and got it straightened out, after I had already had my anxiety panic attack because “I need this surgery but I don’t wanna go into debt and cause my family and friends to go into debt for it.” However, I had to put that anxiety attack away to go enjoy the build-a-bear event with my fiance’, his sister, her husband, and the two children.
The older sister got a “Siamese looking” cat that she named Melody and their mom picked out an adorable bear and put in a “giggle sound,” that made my 9-month-old “future niece,” smile at; we named the bear Giggles. We probably spent more than we wanted to- because if we’d done just the stuffies with no sounds or accessories, it’d have only been $10, but we got each a sound (Melody had a cat sound and the Giggles had the giggle sound effect) so add in $9 more dollars, and then each got one accessory- the cat got a purse, and I don’t remember what the baby got for hers.) The total was $31 something, so $31-$19= the two accessories costing $12 together so about $5 or $6 each. We covered about $10-15 each. It was worth it. I got to forget my anxiety and play with my “future nieces” especially the cute baby. LOL. I love them both, but adorable babies (when not crying and screaming) seem to make the world go right and make you forget your stress, whereas an older child who may not be able to entertain herself that well, may stress you more.)
After Build-a-bear, we went to eat at Cici’s pizza buffet. It was okay. I watched them feed the baby pieces of brownie and how she made that adorable smile at the taste of the chocolatey goodness, and my 9-year-old “future niece,” wanted me to sit by her. She tells me all the time she loves me, she constantly hugs me and wants my attention. She doesn’t seek that from her uncle; she’s even gone as far as to tell the family, “If DJ and Jamie break up, can we keep Jamie instead?” to which the family always corrects her, “aunty Jamie,” and I’m just thinking “don’t force her to call me something if it doesn’t feel natural to her. she doesn’t call DJ, “Uncle DJ,” LOL.
After Cici’s pizza buffet, we departed ways; they were going see a Movie at the theater where my fiance’ brother in law worked at; I think it was only so the 9-year-old wouldn’t beg to stay longer with me and her uncle at the apartment complex, because at the Build-a-bear thing, when we were leaving, she kept saying, “I wish I didn’t have to go home. I wanna stay longer with yall.” Which broke my heart having to be stern and tell her “no,” because she needed to get back and do her Homeschool SchoolWork and plus I didn’t feel that I could entertain her properly: I was still stressing about that letter, in the back of my mind. I told her, we’d try to get her again before I have my surgery in August.
When I got home, I finally had gotten in touch with someone in billing to discuss the letter about being “denied,” financial assistance. They explained that despite it being out of state Medicaid, they were still going to try to file with them, so currently, my balance showed $0.00. The department explained that if Medicaid denies the claim and if I get another bill, just to call them back and explain how I got another bill, and to reprocess my application for financial assistance. So all that anxiety and worry and my panic attack, were basically for nothing because I am not completely “denied,” just denied if Medicaid accepts the claim. I hate how they word the letters, it makes worry creep in. Mom said it was a lesson I need to learn because if I want a family, I can’t be freaking out like that all the time. She also explained how I am not alone in this “battle,” for my obstacles and stuff with my disabilities, I have family, friends, David, his family, etc. But overall that it is the devil playing with me and doesn’t want me to trust in God my father and savior. I need to tell him, “be gone, Satan. My God, my father, loves me and I am wonderfully made for a purpose. He has led me this far for a reason.”
I will try to do better to trust in my God and savior, my loving father, my almighty creator. Amen.
Also when I got home, it started raining so of course, my back started hurting, so I took a 3-hour nap on Pain meds. After waking up, my stomach decided to reject the pizza (I am guessing it was the pizza: my abdomen was swollen, I was bloated and cramping so bad that it sent pain into my sides, my sides of my abdomen were sensitive to touch, and the really bad cramps left me short of breath. It is slowly getting relief after Tums and Pepto Bismol and just time.
Sometimes I wish my life was easy, but God never promised an easy life- Thank you, Adam and Eve, for original sin messing everything up; if they wouldn’t have given in to the serpent’s temptations, we’d all be happy and carefree, running around butt- naked in the Garden of Eden and not knowing any pain or difference. No bullying, no stress, no strife. *Sigh* Paradise lost. However, we are not alone, Jesus, God’s only son, had to die on the cross for crimes he didn’t commit. He suffered, why should we be any better than him and not have to suffer? the answer is, we shouldn’t. Anyway, I am rambling now. Goodnight, God Bless, and try to find the silver lining 🙂