My fiance’ tortured me today- May 2019

Not really! I had a infected bump on my foot and he had to pop it with a needle and I am such a wuss about needles and pain (as much as I’ve been in hospitals and drs appointments)! Then afterwards, he had to put peroxide on it and it burned like hell. I know he doesn’t intentionally do it to hurt me, but to keep me healthy because he loves me. Still don’t know where that bump came from or how it got infected?! Oh well.

Another Mystery of my life.

Latest in my “twisted Tales” Journey-May 2019

I received a letter in mail today from St Louis. No info about if I was approved for hardship assistance/Financial Assistance, probably will call about that, but the letter was to confirm my pre-op appointments. justin case, please pass around my gofundme page https://www.gofundme.com/jamie-has-broken-rods-and-other-problems-occurring

Tuesday July 16 at 10:45 a.m., I will have a meet with Dr. Kelly to discuss surgery and sign my consent paperwork. Also on July 16, at 1 p.m. I will be meeting with the Anesthesia Department to have my pre-op testing completed.

It’s getting more real! August is gonna come so quickly!!!

In other news, we have David’s niece, “Sky-baby,” for the week and also its the apartment complex’s resident appreciation week. We had ice cream and waffles today, tomorrow is trivia and Pizza, Wed. is breakfast in the morning while supplies lasts.  Thursday they are gonna pick up our trash from patios in the morning and afternoon they offering free car washes. Friday is the crawfish boil! I’m so excited to enjoy these events and even more we get to share these fun experiences with “Sky” ❤ we also gonna try to go treat her to Cajun Heartland State fair at Cajundome or we could go to Children’s museum, Girard park, a movie at theater, go show her the turtles and alligators at Cypress Lake at ULL; There is also the option of Go Kart Ranch or Bowling<3 And she loves swimming. 🙂 So just swimming and me doing spa-makeup and dress up, and board games with her, she already has fun 🙂

#AuntJamieandNieceBondingTime #ShelovesmeMorethanherUncle #ImtheFavorite LMAO. I love my future niece and she loves me. She doesn’t notice or care that I have a disability; all she sees is someone who likes to have fun and entertain her and isn’t as impatient with her as her uncle is. She sees someone who doesn’t mind acting like a child but will adult when they need to. ❤

Happy Birthday to my Fiance, David-May 2019

It has been 1 year 7 months and 5 days since we got together on October 24,2017. I had just gotten out of a relationship with my ex and you contacted me on that dating site and wanted to meet. It so weird it has only been a year when it feels like longer. We’ve been through thick and thin, fires, turmoils, arguments, my meltdowns, etc. You taught me new things, you brought back some of that old spark I had lost. When our relationship going good, its golden, but when its bad, it’s like two volcanoes in competition of eruptions- gotta love both being stubborn Taurus bulls. LOL

We both love to cook, we both like to laugh, both like theater productions, sure i take some of your jokes the wrong way, and sure I am not into gaming. But you love me despite my disabilities and all; you are supportive, helpful, creative, generous, got a good heart, am I saying you are perfect? No. But neither am I? We are all flawed humans, but we can work together to build each other up and bring out the best in each other.

Happy Birthday, Baby. I love you. ❤

Youtube ideas- March 2019- *haven’t done yet*

Gonna do a YouTube video(s) with my fiancé (eventually- when I am not hurting or in pain or drugged up on pain meds). Send us any questions or dares or something fun and we’ll answer/do on the video. #truthordare#QandA#fiancetag#bfgftag#jabberjawingwithJamie#youtube
#JabbinJamie #JamieJabs #JamiesJoy #JamiesJoyfulLife #JamiesJourney

Update: didn’t do, due to no one sending questions for us to answer and no “good days” as far as pain goes.

Ideas for my Youtube Channel-March 2019- Not implemented yet*

Thought of something for my YouTube channel. Name the channel “Jamie’s Journey” and have a weekly Q&A segment called “jabber-jawing with Jamie”. Anyone like this idea??? It would give in-depth looks at my life with my disabilities and trying to push through, to have a semi-“normal” life. Some days will be out and about, some will be looking at doctor visits, some will be routines, some will be about me doing cooking/baking, some will be me lip-syncing, etc. … Some will be me dancing around the apartment, some will be tag videos, some will feature guests like my fiance’, my parents, grandmother, family, etc…. However, I am sick and this will not begin until after I am feeling 100% better.

Update: I still have yet to do this, due to my Chronic pain and living on pain meds; probably won’t happen until after I have my surgery for my broken rods.

Answers Finally! But bad news, another pothole plot-twist: Broken Rods (January 2019)

Due to my wound not closing up, we did x-rays and I sent them off to the surgeon who did my back surgery and he confirmed: broken rods and my kyphoscoliosis deformity was worsening. It would explain my increased pain each year, as well as why this wound isn’t closing or cooperating correctly.
Downside? My surgeon can’t accept Medicaid and it is the only insurance I have. To self-pay would range from 250,000 + dollars, not including transportation costs or lodging or food.

I am blessed, however, with an amazing fiance’ who immediately jumped on the computer to start up a gofundme. He says we will do whatever it takes to get this seen about. We also looked into getting a referral to LSU medical hospital in Shreveport. Also blessed by having the former care-coordinator for my surgeon as a contact, and she reached out to the surgeon who took over my surgeon’s position in St Louis. (The one who did mine in 2012, moved his practice to New York). There is something called “hardship assistance” and I can try getting that. We will still have the gofundme just in case.

So until this is solved, I guess wedding plans are on hold??? I need to get out and start prepping my body for revision surgery.

Link for the gofundme: https://www.gofundme.com/jamie-has-broken-rods-and-other-problems-occurring?fbclid=IwAR1eoT8HJHiIHSc6bX9Ej31bO0mhl5TIETaFEvpw8iXrHhme23ZlKcbbdWk

Plot Twist: I am Engaged! (December 2018)

Ever since I can remember, probably once it really (I mean really) “clicked” in my brain that I was different from everyone else, I always thought I’d never date, less become engaged and eventually marry someone.

I always saw these girls in magazines or my peers who were into makeup and fashion and here I was just struggling to look presentable but still comfy. I always saw the girls with bigger boobs, or nicer ass etc got the guys. That was their “dream girl” or so I thought and I thought if that was their dream, then I must be their “nightmare” cause I didn’t look like that.

As I got older, I kind of just gave up on guys, I had gotten hurt too many times and wasn’t gonna put myself out there to be hurt again;  figured I’d be “flying solo” the rest of my life…then after my surgery, I joined an online dating site at my mom’s suggestion, and met a boy with Spina bifida. He brought out something in me that relit the fire of wanting love, wanting to be loved and accepted, and I figured if anyone understood my struggles, it’d be someone with a disability also. Sadly, however, that story ended after 3 years, the fire dimmed and was barely sparks anymore and I was constantly nagging him. I didn’t want to be a “mom” I Wanted to be a girlfriend.

I put myself back out on the dating sites and got a few “hits” saying “hey beautiful” and my comeback was always ‘you must be blind,” “are you being sarcastic?,” or “you need your eyes or maybe your brain checked out.” because I didn’t see myself as “beautiful.” Then enters this older guy by 6 years or so, the same line of “hey beautiful,” my same remarks of doubt, however, he persists and persists and persists; talking every day, wanted to meet publicly. so we did. we began dating October 24, 2017.

we had fun: productions at Opelousas Little Theatre, eating out, playing bowling on Wii or monopoly on the Xbox, taking his niece places, doing a gingerbread house, putting up Christmas village, oh the list could go on and on!

Sure he pesters me and likes to cuddle more than my ex, and I am not used to it and I push him away, but I do love him and like spending time with him, but I wish he’d understand I need my alone time too.

This Christmas he proposed to me! So now we are fiances’ It is so weird but wonderful at the same time!!