Adult, adulthood, Adulting, Chronic illness, Chronicillness, College, Deformity, disabilities, disabled, EDS, Ehlers Danlos Syndrome, EhlersDanlosSyndrome, finances, future, Handicaps, Kyphosis, Life, medical, Money, Physical Disabilities, Scoliosis, Spinal Deformity, SpinalDeformity, Spine, Spoonie, Spoonies, Zebra, Zebras

All about the money: Why does adulting have to be so expensive? (post from Nov. 2019)

I try to usually be a pretty positive person, but like we are struggling financially. The mattress in our bedroom is killing both me and my fiance’ backs so need a new mattress (plus I am still paying this mattress off, 4 years later.).
I dropped my laptop a few weeks back and ever since, have been having to use HDMI cable and tv as a monitor because the screen doesn’t wanna turn on and the last few days, the laptop is starting to show signs of dying worse off. (My fiance says he will build me a desktop pc, so hopefully, my laptop can hold off till then or I can afford to get a keyboard accessory for my Ipad Mini tablet. (I will need one eventually when I go back to college classes.) Since then, my laptop has stopped working with HDMI and my fiance’s cousin is looking into fixing my laptop and since its family, I probably will get a discount but will still cost sadly.

Then finally, I feel like I am straining my eyes more and more each day, even with my glasses. I cannot afford to go to LensCrafters (they don’t take Medicaid) at the moment. Sometimes I think I should just bite the bullet and just get the fricken laser surgery, but I am also scared to do it.

I hate ranting and venting, It just gets overwhelming at times…
Also, Shane Dawson, a YouTuber I have been following since the beginning of his career 2008, and Jeffree Star (who I just started following last year on youtube) collabed and made a makeup collection together and I cannot afford it and I am legit sad and disappointed about it. I just miss being able to afford all the things I wanted. But no, I gotta “adult” and pay for college out of pocket, pay for bills, and rent (thankfully after March that will be done..the rent anyway.) Things will get better, this is just a bump in the road. With God at the helm, I am positive we can make it through any rough weather. ❤ ❤ ❤ God’s will be done.

Career, Careers, Childrens Hospitals, College, disabilities, disabled, dreams, future, Handicaps, Health, hospitals, Kyphosis, Life, medical, Physical Disabilities, Scoliosis, Shriners Hospitals, Shriners Hospitals for Children, Special Needs, Spinal Deformity, SpinalDeformity, Uncategorized

Dreaming big!

I have a lot of dreams and ambitions, even despite having a severe chronic physical disability/handicap, but with the right amount of patience, determination, willpower, confidence, hard work, and God almighty at the helm of my life, anything is possible.

I will pick one thing at a time and will try to accomplish them all eventually, but one at a time.

Uncategorized

Dreamers can dream and dream big

I have lots of interests and lots of dreams. One is to operate a successful food truck (yes, I love to cook and bake). Another is to get my youtube channel going and inspire those also dealing with physical differences and show that nothing is impossible. I also am interested in writing and publishing books (one being my life story, others being books of creative writing works and children’s literature). I also would like to write for childrens tv and movies, especially including characters with different special needs, I’ve also been inspired by seeing the new creations of dolls with special needs and the creation of clothes for children with special needs…I’d like to help do more of that- more special needs included in the toys, and more clothes/costumes for those with special needs, and have my own makeup/accessories line/ clothing line-especially sell shirts that relate to my disabilities of EDS and KyphoScoliosis, etc, but my biggest dream is to open my Own version of a discovery zone type establishment.
Dreamers can dream and dream big.

Uncategorized

Gypsy-Rose Blanchard…hardened Criminal or victim that fell through the cracks? – March 2019

If you don’t know who Gypsy Rose is by now, you must be living under a rock or don’t watch any media; between the Dr. Phil interview with Gypsy in 2017, Hulu’s recent docu-series “The Act,” HBO’s documentary “Mommy Dead and Dearest,” etc.
Gypsy Rose was the girl who had many “disorders” and “life-threatening conditions,” according to her mother, Dee-Dee Blanchard. They received donations,free housing, trips, etc. due to Gypsy’s “conditions.” Only things aren’t what they appear.
Gypsy was a victim of Munchausen Syndrome by Proxy. Her mother, Dee-Dee, forced Gypsy into a wheelchair by the time the girl was 7 years old and subjected Gypsy to many unnecessary invasive operations and procedures. She had Gypsy on a feeding tube and mixed many medications into the tube. Some of the medications side effects simulated the symptoms of some of the disorders that Dee-Dee claimed Gypsy suffered from.
Dee-Dee also never left Gypsy alone with anyone. She told people Gypsy was mild-moderate mentally retarded” and had the mind of a “seven years old,” I think was what was said. She coached Gypsy to not say a word at doctor checkups, and despite CPS investigating Gypsy was too scared and coached to reach out.
By her teen years, she began sneaking around when her mom was asleep. She knew she could walk and would sneak around at night, eating sugary treats and drinks despite her mom saying “Gypsy is allergic to sugar,” (why then would it be in the house is my question), and Gypsy would sneak makeup tutorials, research kissing, boys, etc. She made a fake Facebook and created a dating profile. She eventually met and secretly texted guys. She just wanted a normal life away from her mother’s control. Eventually, she met and convinced Nick Godejohn, her secret online boyfriend, to help kill her mother.

She was desperate. How would you feel? Knowing you were perfectly healthy, knowing you could walk, knowing that if you disobeyed how your controlling mom wanted, she’d react in anger and sometimes be physical?

Gypsy got 10 years on a Second Degree Murder Charge. The system failed her, she would run away, but her mom would track her down and sometimes tied her to the bed. Her mom charmed and lied. From the outside, she seemed like “Number one Mom,” because she seemed so attentive to Gypsy’s needs, but really she was a monster and abused the girl into lying.
Yes, Gypsy did plan to murder her mom, but to be honest, no telling what those meds did for years to mess up her mentality, plus the “lines of morality” were blurred by her putting on this charade for so long.
Frankly, Gypsy is a victim of the system. She needs therapy and mental help from the psychological and emotional abuse that she went through at the hands of her mother who is supposed to have been her protector not her tormentor. Gypsywas desperate and it was the only way she saw she could escape her mother’s clutches.
Please sign the change.org petition, https://www.change.org/p/missouri-governor-free-gypsy-rose-blanchard/psf/share?share=1 Because she doesn’t belong in prison. She was a victim.