Dreams can change the world Poem

Notebook opened, 

pen in hand, 

paper blank, 

thoughts unplanned. 

Mind, 

a jumbled mess, 

so much to say, 

no idea where to begin!

Mind racing, 

head starting to spin!

Thoughts and ideas, 

bouncing around, 

pinballs in my brain. 

A jumbled mess, hurting my head

I sit there,

staring at the blank slate,

Waiting and waiting, 

for the thoughts and ideas, 

to join together, 

to fit, 

like a solved puzzle. 

Looking back at the notebook, 

*gasp* there are words!

The message finally written,

but will it be heard? 

Fight the fear!

Don’t hold back!

Speak your Mind!

I tell myself,

Let your message be heard,

lead the blind.

The message heard, now,

let it change the world. 

My Biggest Fear poem

What is my biggest fear? 

One simple word, 

pplease don’t snear, 

or laugh, 

but, “future” is my biggest fear. 

you may laugh, 

or question “why,” 

but to understand, 

you’d have to walk,

with me, down a twisting, rocky unpaved road.

This “road”, my life, 

is surrounded by a moat of uncertanty. 

A life, 

with a physical deformity, 

leaving the affected, 

to often wonder,

or worry, 

what will the future,

of my life hold for me?

A job? 

who would hire,

despite my medical needs, 

and the expenses of an aid or someone to help me.

Will I marry? 

Or have Children? 

If I do, will my children, too,

have a disability? fear of my future,

my biggest enemy.  

A writer’s mind Poem

It starts with just one sentence, 

just a few words,

on a piece of paper, 

to jump start that engine; 

your imagination, 

the machine of your creativity. 

One sentence, 

soon become, 

something of a masterpiece, 

and Awe. 

A story, a poem, or more, 

a script for a tv show, or 

maybe even a film! 

A pen to paper, 

words on the page, 

once you start, 

it’s beautiful, 

like a baby bird, 

taking its first flight!

For the whole world to bear witness, 

to the inspiring beauty, 

of the imagination Station; 

The creative genius, 

the writer’s mind. 

When you constantly ache Poem

Bomp! Bomp! Bomp! 

Alarm clock blaring its cruel tune. 

Time to wake up, 

you ache all over, 

but still have to face the day’s gloom. 

Yawn and stretch, 

rub sleep from your eyes, 

have to get up, 

greet the day, and

seize your “prize”. 

Another Ache this morning, 

story of your life, 

whether it be back, neck, or head, 

its all the same; 

Pop a pain killer or two or three, 

sometimes you think about Overdosing, 

and ending your misery. 

You decide against it, 

not wanting to hurt, 

those you love dearly, 

by taking your life, 

and making them all teary. 

All you want is the pain to disappear, 

meet its eternal doom, 

and never return. 

When you ache every day, 

life gets hard,

to be happy and thankful, 

sometimes it makes you even turn away from the Lord. 

Don’t forget, 

you are special. 

yes, it’s hard, 

but you are a fighter, 

and so very strong; 

you will be the champion, 

that God had envisioned for you, 

all along. 

“who is Jamie” Poem 2

All my life,

I’ve sat on sidelines,

sitting and watching,

letting life pass by.

“you can’t do this,”

“oh, be careful!”

“don’t hurt yourself!”

I always let people,

who I thought,

were only protecting me,

and knew better than I,

decide what was right,

and what was wrong.

So now,

as an adult,

I have no true standing,

not sure if things are,

good, safe, or Okay,

scared of messing up,

and looking like a fool.

Once again,

still on the sidelines,

letting everyone else, including my fears,

live and control my life.

How can it be?

Me, an adult? when so many didn’t let me,

didn’t give me space,

to learn and breathe,

make mistakes,

to figure out

Who is Jamie?

The latest “Twisted Tale” in my journey called life; Surgery coming up fast!!!!

so the latest on my back: I saw dr. Kelly today. He is very optimistic. His plan is if my rods aren’t infected (we did labs), he says he will just open the incision scar where my rods are broken at, clean up my wound, and add in some “dominoes” and add in some extender rods.” It will be “Simple and sweet,” as he put it. 

:p The date is the same, August 14, but I need to be here by the 12th because I need to go to get my central line valve put in on the 13th. If he does what he wants, “simple and sweet,” he doesn’t think I will have as many complications like I did last time bc last time I had broken ribs and pneumonia from that which led to trach, blah blah blah…the framework already there, this is just some maintenance repair! LMAO. 
But whatever God’s will, will be done. 

Share my go fund me please!!! https://www.gofundme.com/jamie-has-broken-rods-and-other-problems-occurring

A pretty great Sunday :)

I woke up with a minor migraine, but no level 10 pain today in my back- could’ve been that I knew Mom was bringing my sweet Beignet (my mixed-breed rescue dog) for a visit; ever since finding out about my broken rods, she’s been living with Mom due to my not being able to hold her leash for walks. Mom dropped her off around 10:30 a.m. (Mom went to Mass). 

Mom came back from Mass at about Noon and asked what David and I were doing for lunch. I said, “we have leftovers, but it didn’t sit well on my stomach.” Mom asked “what do you want to do,” to which I replied, “I know I always say it’s blasphemy to have Deano’s pizza without Dad, but…” Mom laughed and replied, “but you want it?” To which I nodded my head. She got a giant 3-type pizza like we normally do and it was delicious! She then left to go get things from my Uncle and Aunt’s house and was going to come back afterward to pick Beignet up to go home (She came back at around 4ish.) 

I got to spend about half the day with my sweet Beignet 🙂 We snuggled, practiced some commands, played with her toys, all 3 of us took a walk (David, Beignet, and I- David held the leash). Was a great visit with her, and I was ready to see her off at 4ish because I wanted a nap (didn’t want her to leave, but I knew she was gonna leave anyway- so I wanted to treasure the time I had with her). 

While Beignet was here, I had very minimal pain, but it must’ve been a distraction or something because a half hour after she left, I had to take my pain medication because it hurt really bad again. *Sigh* 

At least half of my day was good and sunshiny, that is better than nothing at all 🙂