Allergies, brats, Bronchitis, Childhood, Childrens Hospitals, Chronic illness, Chronicillness, colds, Deformity, disabilities, disabled, doctor, Doctors, EDS, Ehlers Danlos Syndrome, EhlersDanlosSyndrome, flu, Handicaps, Health, illness, Kyphosis, Life, Lungs, medical, needles, pediatrician, Physical Disabilities, Pneumonia, Respiratory, Scoliosis, Shots, sick, sickness, Special Needs, Spinal Deformity, SpinalDeformity, Spine, Spoonie, Spoonies, Summer, Summertime, Uncategorized, Zebra, Zebras

Scoliosis Journey: Cough,Cough, first Summer Pneumonia

Due to the severity of my Scoliosis/Kyphosis, in summer after 4th grade, I had my first bout of Pneumonia. For those who may not be aware of everything that Scoliosis effects, here’s a health lesson; it’s not just the spine. Sure, the definition is “Lateral curve of the spine,” but it all depends on the severity. My Scoliosis became what is known as Kyphosis, “Hump Back,” and is multiple curves, whereas Scoliosis is just one curve. The more a spine curves, the more it can cause other internal problems in important organs such as the heart, stomach, lungs, etc. Before my surgery in 2012, my lung capacity was 18-20%, I had ribs twisted around my spine, a lot of stomach problems, and problems that were never diagnosed or discovered until my pre-op visit or after surgery; (How weird is that?) Anyway, I was almost finished with my week of Summer VBS (Vacation Bible School- a weeklong camp that is put on by local churches/religions), when the Wednesday night, I started to develop a cough. Mom took me in to see my pediatrician, and he said, it had started as a typical “summer cold,” and due to my hatred of shots, my doctor just gave us cough medicine. The medicines, however, did not work, instead, my cough progressed until I had a “popping” in my back every time I coughed. I say Pneumonia, but it might’ve been bronchitis that was turning into Pneumonia, I don’t remember exactly what the doctor had told my mom, other than the fact I needed a shot; that memory stuck with me!
We went down to the pharmacy that was in the same plaza as my pediatrician’s office and as soon as we got back to the doctor’s office and I saw that needle, I had a full meltdown in the doctor’s office, to the point where mom had to hold me down. Normally shots are given in the arms, or the butt, right? Mine was in my legs because it was the only spot on my body that had “any meat” on me. You should’ve seen it, mom holding me in her lap, me tossing and turning, her having to trap my legs under hers so I wouldn’t try to kick; I laugh now that I think about it because shots aren’t that bad anymore, sure they are unpleasant, but really a quick pinch and then it’s over.

After the shot, I was crying and telling my doctor “I hated” him and how “he was so mean,” being a total brat, but by that night, I felt like 50% better. Shots may suck, but you feel a lot better afterward because they work quicker than medicine. Life is a lot like a shot, there are changes we don’t like or can’t deal with, we cry and boo-day about it, but it doesn’t change the fact that it is going to happen; it’s a slight “pinch” (shock/anger/sadness, etc), but then we adapt to it and are over it.

College, History, School, Teaching

World’s greatest college professor; Dr. B!

When I first began my “adventure” as a college student, during my second semester I met a professor that would change my life for the better. It isn’t very common that students become friends with their professors and the professors’ families, but that is exactly what would happen to me.

This professor was a history professor at LSU-E, Dr. Tony Baltakis. When I first started his class, I just went to class and loved it because he made history interesting; I also liked how “if you tried,” he’d “work with you,” and try to help you as much as he could. Other than that, we were just a student and professor, nothing unusual. Until one day, the elevator was out of order and I needed it due to my physical limitations and the fact I used a rolling backpack (which doesn’t mix too well with stairs,) “Dr. B” as we often called him, saw me as he was heading to the staircase and asked if I needed him to “carry my bag and me,” to which I laughed and told him, “I got two working legs, Dr. B, but if you could bring my backpack for me, that’d be great.” Turns out his wife, Mrs. Donna, had Polio and had limitations as well, so he seemed to have a “soft spot” for those with special needs. After that, when he’d see me around campus, he’d joke and pick at me, “there’s my girlfriend,” to which I would pick back, “you better watch out, Dr. B, I’m gonna tell Mrs. Donna on you,” hile laughing.

His birthday was the end of the fall semester in December, and I got my mom to bake him some yummy treats (to share with his family if he chose- after all, it was mainly for his birthday) but Mom put in extras for Christmas treats, as well (Yes, I know, My mom is pretty awesome LOL.)

Dr.B’s teaching methods involved putting his powerpoints up online for the students to print out or to use their computers to add in notes he gave in class that wasn’t included in the power points, he also would review what material our tests would cover, he’d go over the guidelines to the way he wanted our book reports done, and he had an “open door,” office policy- if students had questions, he’d allow them to ask in class or if they were “Easily embarrassed,” after class/ during his office hours. As long as he saw students giving effort, he’d “work with them,” offering bonus points for certain things that encouraged learning (museums and such,) or for attending the performing arts performances through LSU-E that He and his wife were in charge of.

He only had a couple of “pet peeves”: playing with phones during his class, heads down on the desk, or some falling asleep during his class. I only saw one or two students get tossed out of class when the pet peeves happened. Dr. B would often say that he didn’t mind students debating if they had a difference of opinion, but I saw plenty of times he’d get on his “soapbox,” as we called it; I think some students would debate him just so he’d get on the soapbox and waste the class period.

Whether it be him on a “soapbox” rant or his actual history lesson, it kept my attention either way. He wasn’t like some professors who try to force their views down their students’ throats; being a professor of History; he’d present both sides and the history behind them. It was really interesting. 

To Be completely honest, before college, I wasn’t at all fascinated with history, but after the first history in college, with Dr. B as my professor, I went on to take 2 other history courses that he also taught(1 of which wasn’t required for my degree.)

A year or so later, I had to go up to St Louis, Missouri to have halo traction and back surgery

for my severe Kypho-Scoliosis (159-degree curve, 18-20% lung capacity, and my ribs had twisted around my spine.) I spent 7.5 months in halo traction and 2 or so months for surgery and recovery in St Louis; Miles away from my home, family, friends, and loved ones. Dr. B and Mrs. Donna often wrote to me either letters in the mail, email, or through Mrs. Donna’s Facebook; following my updates on my health progress and such, sometimes they were also my “pick me up” when feeling down or upset and would give me encouragement or advice. 

When I got home after surgery and resumed my college courses, upon seeing me for the first time since I had my surgery, Dr. B, hugged me and was amazed at how“straight” I looked now and that I had “gotten taller.”

Even though I am no longer at the college that he teaches, we still keep in touch. Even when I struggle with courses and have moments of doubt and wanting to give up, he and Mrs. Donna, are there to encourage me, support me, and remind me that maybe I can do my dreams differently. I am pretty sure (actually I know for a fact,) if I straight up quit college altogether, he and Mrs. Donna would be on my case like a lot of my family and friends, to which I appreciate and love them for. Mrs. Donna often asks about me and college and reminds me, “Dr. B and I want you to get that degree!” I just love having my own little cheering section in my life outside of family (Family kind of has to support you. lol.)

Dr. B, about a year ago, got into a motorcycle accident and got badly injured. Upon seeing that on Facebook, I was instantly heartbroken and upset that something like that could happen to such a loving, great guy like Dr. B. 

When I had time and a ride to bring me (even though I drive, I been having more increased pain lately due to some rods from my surgery being broke-since then have been fixed with new surgery Aug. 2019,) I went spend an hour or two visiting with him. It was so good to see him, even though he had a cast and looked like he was in pain.

If anyone is deserving of a Teaching Excellence Award, it is Dr. B.(Actually he deserves alot of awards and praise not just for teaching!) He not only makes history enjoyable and interesting, but he taught me a lot of other things too: compassion and empathy for others, to help your fellow man or woman, not to “count myself out,”/ to have confidence in myself despite my limitations, the list could go on forever, but you all get the idea; he’s a dang-great professor and an even greater family-friend.

I love you, Dr. B and Mrs. Donna! Thanks for being such an amazing part of my life. PS we are due for a catch up visit. Lets do a dinner get together soon; My fiance and I can cook and we can just chill out and catch up! It’ll be fun! ❤ Anyway Love yall so much and have a great day and hope this makes yall day ❤ Hugs!

art, comics, fantasy, Fiction, heroes, Kyphosis, medical, Scoliosis, superheros

2015 Art: Scoliosis Girl– Hero to All!

Meet scoliosis girl. She’s a super hero who happens to have scoliosis, but she doesn’t let it stop her from fighting against bullying and discriminations. She rights the wrong! She kicks butt and takes names. Lol.

(And no, this isn’t my alter ego, although we do share similarities lol)

No photo description available.

I may get back into art and make more disabled and special needs characters. May even compile stories for them and make a comic book or something. Just have to sit down and brainstorm and actually do it. #Representation 

Uncategorized

Depression..The silent killer.

It’s officially December and I am not in the Christmas spirit like usual. Usually, I would be going all out with decorations and such, but not this year- maybe lights and that’s it. Due to moving in Jan. We don’t want to have to haul extra stuff than what is needed. Plus, it will be the first Christmas without Mommie, Mr. Mike James, my cousin Racheal Mary Meche, Ms. Nancy Moticka

It has been too much death in one year; not to mention all the other I care about who isn’t around anymore either- My other grandmother (maw), and then one of the most influential women in my life, Mrs. Evelyn Zehner, “Mrs. Z” from Camp we can do. It’s just so hard… I know there are worse people off, but for some reason I just cannot get into the spirit yet this year. Is it because of not decorating much this year, the financial stresses and having to ask mom to loan money for us to buy Christmas gifts until David can find a job? I don’t know. Just tired of always being miserable. I can’t remember the last time I was sincerely happy for more than a few hours.

😥 I don’t know, I just been depressed all day today. Hopefully, I can get out of this funk. Prayers appreciated. I hate it when I get depression.

Uncategorized

Wedding plan update…still gonna get married..

There’s been a mutual decision between David Piazza and I after all of us discussing things over with Mom, to push the wedding back another year. So it’ll be may 2021.. we haven’t gotten much done as far as planning and in Catholics churches, need to let church priests know 6 months ahead of event.. That’d be next month, plus we’ll be moving into my parents’ house the beginning of 2020. Plus this way, I’ll be over a year post-op and better able to plan and enjoy it. Sorry for any disappointments but tis life ❤️❤️❤️🤷 we feel this will be better in long run.

Uncategorized

A wrecking ball of bad news; my heart broken and demolished into a zillion pieces.

Today, while in the waiting office of my pain management dr, I was scrolling through facebook, when I suddenly saw something that ruined my entire rest of my day; A friend of mine in St Louis, Missouri, Mr. Mike James, passed away overnight.

I met Mr. Mike James in 2012 while I was in halo traction at Shriners Hospital for Children-St Louis; he worked at Cabela’s and the company would come to the hospital once a month for “Cabela’s night” where their volunteers would bring educational things about Native Americans, animal trapping, hunting stuff (no weapons) just pictures or like duck calls. It was a highlight of the month for all of the patients to enjoy.

I was one of the oldest patients there, so the adults would often talk to me about “Where I was from,” “what I liked to do,” “If I had ever been to a Cabelas,” stuff like that, and a few of them got close with me because of my “spunky attitude,” these included Mr. Mike James, his wife Nancy, and our mutual friend Beverly Duval. They were there through it all- my surgery, my recovery until I went home, when I went back for checkups, when Beverly hosted me for a week for spring break, my first boyfriend, and they had just met my fiance’ and he approved of him, even liked him, and planned on attending the wedding next year. Now he’ll just attend in spirit.

One week and a day ago, we were having dinner with you and your wife. One week and a day ago, we were laughing and chatting and catching up, you and my fiance’ were talking “hunting, guns, Trump, politics, all kinds of things.” Plans were made to attend my wedding next year, talks of us thinking of possibly moving near you and your wife, plans for you and my fiance’ to go hunting together. 
Now you are gone, back to heavenly home and everyone left behind are in mourning. 
You were one heck of a guy, Mr. Mike James. I will miss your comments on my facebook, I will miss seeing you when I go up to St Louis. It feels like a bad dream that I cant wake up from. I wish I could just wake up and this nightmare not be real. It feels like someone punched me in the stomach. it feels like a giant lump in my throat. It feels like my heart has shattered into a zillion fragmented pieces. 

😥 RIP Mr. Mike James. I know you def. earned your angel wings. 

❤ Fly High.

Uncategorized

The latest “Twisted Tale” in my journey called life; Surgery coming up fast!!!!

so the latest on my back: I saw dr. Kelly today. He is very optimistic. His plan is if my rods aren’t infected (we did labs), he says he will just open the incision scar where my rods are broken at, clean up my wound, and add in some “dominoes” and add in some extender rods.” It will be “Simple and sweet,” as he put it. 

:p The date is the same, August 14, but I need to be here by the 12th because I need to go to get my central line valve put in on the 13th. If he does what he wants, “simple and sweet,” he doesn’t think I will have as many complications like I did last time bc last time I had broken ribs and pneumonia from that which led to trach, blah blah blah…the framework already there, this is just some maintenance repair! LMAO. 
But whatever God’s will, will be done. 

Share my go fund me please!!! https://www.gofundme.com/jamie-has-broken-rods-and-other-problems-occurring