My fiance’ tortured me today- May 2019

Not really! I had a infected bump on my foot and he had to pop it with a needle and I am such a wuss about needles and pain (as much as I’ve been in hospitals and drs appointments)! Then afterwards, he had to put peroxide on it and it burned like hell. I know he doesn’t intentionally do it to hurt me, but to keep me healthy because he loves me. Still don’t know where that bump came from or how it got infected?! Oh well.

Another Mystery of my life.

update from last post- April 2019

Just got off the phone with Dr. Kelly’s nurse person (dawn). She said that she hasn’t gotten the CT CD in her possession yet, despite that the tracking on USPS said it was delivered Friday. She says not to worry that it doesn’t mean it wasn’t delivered to a wrong spot, she said more than likely it has arrived, but the mail department has to sort through the mail and then bring it to them. She said as soon as she gets it, she will bring it up for Dr. Kelly to look at and then call me ASAP.

Will keep yall posted. If I haven’t heard back by Wed or Thursday, I will call them back again

Update- March 2019

I legit have the best mom, hands down. She gave up some of the time she could be doing stuff for Heather’s baby shower to calm my anxieties and took me to wound care. Good news, it’s not an infection, it’s just a little red and that is “common when healing,” and I just need to “try to keep it covered as much as possible to keep infections out.”
She then asked if I had anything to eat at my apartment, which I did, but I told her “yes, but I am so tired of leftovers.”

Her: “Well, what are you hungry for? Sonic? Burger King? McDonald’s? Taco Bell?”
Me: “Taco Bell”
Her (continues listing, which was a mistake): Chick Fil A
Me: Oh my goodness, yes! My weakness! Chick Fil A!
Her: oh my! What about your stomach?
me: I am hurting in my back which means I don’t give a flying flip about my stomach’s issues. when I hurt, I eat junk. its my comfort.

her: Okay.
(so yes, she got me Chick Fil A nugget meal).

Then we went to Target, she needed some things for Heather’s baby shower, but didn’t find anything of what she wanted.
Her: Need anything before we leave?

Me: Well, I’d like some snacks so I am not stuck eating creamy peanut butter out of the jar till my food stamps come in.

Her: Like what?
Me: Just some popcorn, a thing of chips, some real coke cola and not the no-name brand cheapo one me and David been getting at Fred’s, some fruit roll ups, and some type of cookies.

Her: okay. I’ll get that for you.

So I legit have the best Mom in the world! and a great Dad who works hard to pay for it 😛 ❤ #Blessed

anyway, I am home now, and going try to rest despite my back aching.

pain level 100 tonight 😭😭😭😭- March 2019

I legit want to break down, crying in the fetal position, due to how much pain I am in tonight. My curve is sensitive to the touch and making “creaking” noises. My pain meds don’t seem to even dull the pain anymore.
The CT scan needs to hurry and done (found out today that Medicaid approved, so now just to wait to be put on schedule UGH!) So I can get this surgery and get back to a semi-normal life like I had before all this pain!
#ScoliosisProbs #KyphosisProbs #Humpback #HunchbackGirl #TwistedSister #TwistedPretzel #PretzelGirl #CurvyGirl #Curvyinwrongplaces #EhlersDanlosSyndrome #EDS #ZebraGirl #SpinalFusion #BrokenRods #NeedRevisionSurgery

Medicaid Headache (March 2019)

So I have been waiting for orders for a CT scan to be approved for a little over a week, almost 2 weeks through Medicaid. I decided to call to find out what the hold up is.
Took 3 calls back and forth from Medicaid to my GP’s office, but I think I finally got it all straightened out.

1st Medicaid person: we need them to do prior authorization. (Total confusion, I hang up and then clear my head and call again to better explain my situation.)

2nd Medicaid person: shows only 1 CT scan and it shows it been approved. They need to call us with the prior authorization # that was sent back to them.

(Okay, simple enough. I call my Gp’s office): There was another one that needs to be done and the website shows that one is still pending.

Okay..so I call Medicaid a 3rd time: The 2nd order isn’t showing up on their side so I sit on hold while they call the GP’s office and try to get this all straightened out.

I Need these CT orders done so I can get my CT sent to Dr. Kelly and figure out a surgery plan to fix my broken rods and get the f off these pain meds.

Waiting and living on pain meds isn’t a life!!!! Why does Medicaid and health-related issues (billing, etc.) have to be such a freaking headache????

Ideas for my Youtube Channel-March 2019- Not implemented yet*

Thought of something for my YouTube channel. Name the channel “Jamie’s Journey” and have a weekly Q&A segment called “jabber-jawing with Jamie”. Anyone like this idea??? It would give in-depth looks at my life with my disabilities and trying to push through, to have a semi-“normal” life. Some days will be out and about, some will be looking at doctor visits, some will be routines, some will be about me doing cooking/baking, some will be me lip-syncing, etc. … Some will be me dancing around the apartment, some will be tag videos, some will feature guests like my fiance’, my parents, grandmother, family, etc…. However, I am sick and this will not begin until after I am feeling 100% better.

Update: I still have yet to do this, due to my Chronic pain and living on pain meds; probably won’t happen until after I have my surgery for my broken rods.

Xrays and Shreveport LSU E.R. visit (Feb. 2019)

my wound care doctor suggested going to ER at LSU med center in Shreveport to just have them look at my back and consult about the broken rods. Mostly a wasted trip..I knew the rods were broken and I was pretty sure they weren’t gonnado any surgery on me; plus the doctor’s name was “dr. Sin” LOL..Never trust a doctor with the name Sin! JK. I am sure he is a great doctor, but I already have my hopes set on Dr. Kelly in St Louis since he trained under Dr. Lenke (who originally did my surgery)