Tag: potholes

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Answers Finally! But bad news, another pothole plot-twist: Broken Rods (January 2019)

jamiesjourney0591

Due to my wound not closing up, we did x-rays and I sent them off to the surgeon who did my back surgery and he confirmed: broken rods and my kyphoscoliosis deformity was worsening. It would explain my increased pain each year, as well as why this wound isn’t closing or cooperating correctly.
Downside? My surgeon can’t accept Medicaid and it is the only insurance I have. To self-pay would range from 250,000 + dollars, not including transportation costs or lodging or food.

I am blessed, however, with an amazing fiance’ who immediately jumped on the computer to start up a gofundme. He says we will do whatever it takes to get this seen about. We also looked into getting a referral to LSU medical hospital in Shreveport. Also blessed by having the former care-coordinator for my surgeon as a contact, and she reached out to the surgeon who took over my surgeon’s position in St Louis. (The one who did mine in 2012, moved his practice to New York). There is something called “hardship assistance” and I can try getting that. We will still have the gofundme just in case.

So until this is solved, I guess wedding plans are on hold??? I need to get out and start prepping my body for revision surgery.

Link for the gofundme: https://www.gofundme.com/jamie-has-broken-rods-and-other-problems-occurring?fbclid=IwAR1eoT8HJHiIHSc6bX9Ej31bO0mhl5TIETaFEvpw8iXrHhme23ZlKcbbdWk

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Another Pothole bump in the road Plot-twist: More medical issues. (January 2019)

jamiesjourney0591

know what I hate? people who don’t mean what they say…
I have been fighting a wound on my back on my incision scar from my back surgery since May 2017; it closes 3/4 of the way, then it reopens due to a hyper granulate of scar-tissue or something. The Dr in wound care has tried everything from “packing” it, cauterizing it, going in and taking out what he thought was the problem. He is at a loss, so he asked the orthopedic if he’d see me and he said he would. Well now, when they try to schedule me an appointment, the orthopedist’s office says they cant because I have Medicaid when the doctor already said he’d see me! 😡 
So now they suggested, getting my medical records and going into the E.R. at the LSU hospital in Shreveport. The E.R. because the office is backed up for appointments. 
This thing has been a giant pain in the butt, oozing all the time, wearing gauze and paper tape or bandaids, or spray/washing my shirts due to the oozing, only using towels once after bathing which increases washings; plus maybe that’s why I am so much achier now. I don’t know, but man this crap better be taken care of by my wedding next year. 
In other news, I am being sent to an oncologist (just the word freaks me out because usually they are associated with cancer.) My white count has been high since May 2018 right after the procedure to clean up my wound, and my GP couldn’t figure out why. could it be the wound being infected or could I have cancer? I do bloodwork on the 17th. Keep me in prayers, thanks. 
All these medical issues are one reason I am sitting out this semester of college.