ADA, Adult, adulthood, Adulting, Chronic illness, Chronicillness, Crazy, Deformity, Differently Abled, DifferentlyAbled, disabilities, disabled, Disableds, disorder, disorders, dreams, EDS, Ehlers Danlos, Ehlers Danlos Syndrome, EhlersDanlos, EhlersDanlosSyndrome, Entertainment, Fun, Funny, Handicaps, Humor, Joint Pain, JointPain, Joints, Joints Pain, Kyphosis, Life, Medicaid, medical, Physical Disabilities, Playtime, rare disabilities, rare disorders, rareDisabilities, rareDisorders, Scoliosis, Silly, Social Media, social networks, Special Needs, Spinal Deformity, Spinal Fusions, SpinalDeformity, SpinalFusions, Spine, Spoonie, Spoonies, story, Syndromes, Tiktok, Uncategorized, Youtube, Zebra, Zebras

Putting my tiktoks on youtube

just in case we lose the app because of Trumps talks of banning the app. (I really hope Microsoft is able to buy it.) I love some of the videos I made. 

Tiktok is one of the few things that I can do to entertain myself on a pain day. I really hope it doesn’t go away. 

anyway, here is the video . 

Uncategorized

New youtube Video- Facebook Live video

I did a Facebook live at 4 this morning, having not had much sleep due to massive pain and spasms from the cold, wet weather here in Louisiana.

It is very random and silly, I was sleep-deprived (I did have a few hours, not many), on pain meds and melatonin that had the opposite result of what they normally do- normally knock me on my ass and make me sleep but no luck this time.

It is rather hard to sleep through what feels like every muscle in your back/spine tightening, twisting, pinching, jumping, and twitching. It feels very weird and can also make the nerves in your insides itch a lot!