Adult, adulthood, Adulting, Chronic illness, Chronicillness, College, Deformity, disabilities, disabled, EDS, Ehlers Danlos Syndrome, EhlersDanlosSyndrome, finances, future, Handicaps, Kyphosis, Life, medical, Money, Physical Disabilities, Scoliosis, Spinal Deformity, SpinalDeformity, Spine, Spoonie, Spoonies, Zebra, Zebras

All about the money: Why does adulting have to be so expensive? (post from Nov. 2019)

I try to usually be a pretty positive person, but like we are struggling financially. The mattress in our bedroom is killing both me and my fiance’ backs so need a new mattress (plus I am still paying this mattress off, 4 years later.).
I dropped my laptop a few weeks back and ever since, have been having to use HDMI cable and tv as a monitor because the screen doesn’t wanna turn on and the last few days, the laptop is starting to show signs of dying worse off. (My fiance says he will build me a desktop pc, so hopefully, my laptop can hold off till then or I can afford to get a keyboard accessory for my Ipad Mini tablet. (I will need one eventually when I go back to college classes.) Since then, my laptop has stopped working with HDMI and my fiance’s cousin is looking into fixing my laptop and since its family, I probably will get a discount but will still cost sadly.

Then finally, I feel like I am straining my eyes more and more each day, even with my glasses. I cannot afford to go to LensCrafters (they don’t take Medicaid) at the moment. Sometimes I think I should just bite the bullet and just get the fricken laser surgery, but I am also scared to do it.

I hate ranting and venting, It just gets overwhelming at times…
Also, Shane Dawson, a YouTuber I have been following since the beginning of his career 2008, and Jeffree Star (who I just started following last year on youtube) collabed and made a makeup collection together and I cannot afford it and I am legit sad and disappointed about it. I just miss being able to afford all the things I wanted. But no, I gotta “adult” and pay for college out of pocket, pay for bills, and rent (thankfully after March that will be done..the rent anyway.) Things will get better, this is just a bump in the road. With God at the helm, I am positive we can make it through any rough weather. ❤ ❤ ❤ God’s will be done.

Career, Careers, Childrens Hospitals, College, disabilities, disabled, dreams, future, Handicaps, Health, hospitals, Kyphosis, Life, medical, Physical Disabilities, Scoliosis, Shriners Hospitals, Shriners Hospitals for Children, Special Needs, Spinal Deformity, SpinalDeformity, Uncategorized

Dreaming big!

I have a lot of dreams and ambitions, even despite having a severe chronic physical disability/handicap, but with the right amount of patience, determination, willpower, confidence, hard work, and God almighty at the helm of my life, anything is possible.

I will pick one thing at a time and will try to accomplish them all eventually, but one at a time.

Business, Businesses, disabilities, disabled, Handicaps, Humanity, medical, Physical Disabilities, Uncategorized

calling all 90s babies: Discovery Zone- the staple of our childhood!!!

Anyone who was around in the 90’s must remember the heaven on Earth for kids known as the Discovery zone, If not, here is a video commercial to remind you.

DZ was my favorite place to go; Mom used to have to practically drag me out (kicking and screaming with tantrums) and I’d eventually gotten a spanking for misbehavior.

However, DZ eventually closed down all locations in 1999. I remember the day I found out like it was yesterday; I begged my babysitter to take me to Lafayette because I wanted to go to DZ. We pulled up at the location to find the lights off, doors locked, and the inside completely bare. I couldn’t read well at the time, but my babysitter told me that they were no longer in business. I called my mom crying because it felt like my whole world fell apart. (I didn’t do well with changes; I still don’t LOL)

There was soon news floating around social media that DZ was making a comeback, however, it wasn’t anywhere local near me, sadly.

It inspired a dream in me though for my hometown, home-state, and maybe eventually national; If I ever hit the mega millions, I would build a fun-entertainment place for kids! It’d be a combo of DZ, kart ranch, bowling alleys, trampoline and fun jump places, arcades, etc ..and it’ll be called “Auntie Jamie’s Funtime emporium” (working title, may change..)

But that’s one of my dreams!! #determined. a mix between Discovery Zone/ Gatti Town aka Incredible Pizza/ Sky zone/ Jump Zone/ Kart Ranch/Skate Zone/ Chuck E Cheese/ Children’s Museum… all in one. Wouldn’t that be fun?! the 90s kids would remember the fun of Discovery Zone, Skate Zone, Kart ranch, Children’s Museum, and Chuck E Cheese, whereas the newer generation would be familiar with Gatti Town, Sky Zone, and Jump Zone. 🙂 FUN FOR ALL 🙂 Damn, why can’t I have money to invest in such a project?

and the best part of mine would be: Handicapped and special needs accommodated: Wheelchair Accommodations/modifications, Quiet rooms for Autism kids, etc.

I even drew an outline idea of all the inclusions.