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Life in Slideshows

I made more slideshows about my life in pictures. I added all my slideshows to a playlist on my youtube. 

Link to playlist: My Life Slideshows – YouTube

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Facing Fears= Stage Fright: reading original Poem (2015)

For as long as i can remember, i have had massive stage fright. In 2015, I wrote a poem I was rather proud of and decided to put myself out there and read it at the LSU Eunice College talent show. I did really well and for weeks after, I got compliments on my poem. I felt so proud and accomplished 🙂

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Scoliosis Journey Vids

New videos on my youtube: A slideshow of my 2012 Halo Traction+ Surgeries in St Louis, Walking after surgery, and rambling on pain meds after surgeries.

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Heart Dr appointment and new medical vocabulary

Today was my cardiovascular appointment with my heart doctor and it seemed like a same-old same old- type appointment; which may be true for the doctor, but for me, as I have never really read over my discharge appointment summaries before really, I was shocked.

For some reason I decided to read my discharge summary papers once I got in the car, and according to the papers I had a few problems I was not aware of. I knew that they had said I had a valve that was being watched, but according to the papers, I have “acquired insufficency of aortic valve”, in addition to “non-rheumatic mitral regurgaitation,” as well as Sinus Tachycardia (I knew I had tachycardia but learned what type). I also have WPW (Wolf Parkinson white syndrome, which I knew about already and had a cardiac radiofrequency ablation for it in 2013.)

I scheduled a Echocardiogram for Jan. 15, 2021 at 7:15 a.m. and will get results on Jan 20, 2021 and will update with results when I get them.

But to see those new medical problems (even if they not new in my medical history, they were new for my discovery) were definitely scary and made me realize I need to maybe pay more attention to my medical information. It is my body, I need to be familiar with it.

Anyway, goodnight all.

Image may contain: text that says 'Problems 1. Acquired insufficiency of aortic valve 2. Non-rheumatic mitral regurgitation 3. Sinus tachycardia 4. WPW (Wolff-Parkinson-White syndrome)'
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Errand in town ends in Disgust!

I was so disgusted today! I went into Citi Trends in Opelousas and was looking for baby clothes for my fiance’s niece, and I passed a T shirt on a 4T hanger that had “Juicy” written on the shirt! Seriously?! FOR a 4T?! That is a 4 year old! What self respecting parent would put their child in that?! That is like a calling card for pedophiles or these “Minor-Attracted people” as they wanna be called now. UGH! I legit wanted to puke in my mouth. With all the child trafficking, child abducting, human trafficking stuff running rampant in today’s society now-a-days, they would put this trash out?! WTF. Rant over!

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Youtube: Music and fun

 I have always loved music. I may not have a great singing voice or ability to dance good, but play a good song and get me with just family/friends (if people I dont know are around, I WILL NOT PUT MYSELF OUT THERE), I love to have fun. It gets me out of that “poor pitiful me, I hurt all the time,” Mood. 🙂 

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Family Court corruption cases, CPS corruptions: Stand with Sophie Long, Justice for Chase, Justice for Hazel, Justice for Sloane, etc.

 A lot of people may have their own opinions on these issues, but I know for a fact that CPS and Family Courts are corrupt and that a lot of times it isn’t for “best interest of the child,” but its more a power play of which parent has more power/infleuence/ or money. “Money talks, Criminals walk.” I know people believe the “father’s rights,” and “Parental alienation” etc, but in my heart, I don’t feel that children can fake the levels of emotions in these videos. Maybe I am wrong, but I rather be wrong and do my part to prevent another “Gabriel Fernandez” case happening. 
In my heart, I think by age 5, children should have a say in who they want to live with. Again, maybe I am wrong. 

please check out my video compliations of the cases: 

#Medical, ADA, Adult, adulthood, Adulting, Broken Rods, BrokenRods, Chronic illness, Chronicillness, Connective Tissue, ConnectiveTissue, Deformity, Differently Abled, DifferentlyAbled, disabilities, disabled, Disableds, disorder, disorders, doctor, Doctors, EDS, Ehlers Danlos, Ehlers Danlos Syndrome, EhlersDanlos, EhlersDanlosSyndrome, Friends, Friendships, Handicaps, Health, HealthCare, Infection, Infections, Joint Pain, JointPain, Joints, Joints Pain, Kyphosis, Life, Medicaid, medical, Physical Disabilities, rare, rare disabilities, rare disorders, rareDisabilities, rareDisorders, Relationship, Scoliosis, Shriners Hospitals, Shriners Hospitals for Children, Special Needs, Spinal Deformity, Spinal Fusions, SpinalDeformity, SpinalFusions, Spine, Spoonie, Spoonies, support, Syndromes, travel, UnBreakable, Uncategorized, Zebra, Zebras

Disability update- Scoliosis Update: St Louis check up appointment

 On September 22, 2020, I had my appointment with Dr. M Kelly at CAM Center in St Louis, Missouri. He didn’t seem too worried about the broken rod at this time. the rod is broke but it’s still got some support from other rods and such, we not doing anything at this time (if rod gets worse or something, then we’ll see our options. Not really wanting to go back in at this time because the wound I had previously s finally behaved and “quiet.” So he’s like “let the sleeping dog lie,” to which I translated “don’t poke the bear” and he agreed.The “rod pain.” Is not rod bc the broken rod is on other side of my back, but it’s probably “muscles” or nerve pain instead. Which thinking back after my surgery in 2012 I did have similar pain but this round feels worse than last time. Idk. Maybe my fall made it worse..idk. 🤷‍♀️🤷‍♀️🤷‍♀️ anyway that’s the update.

other than that it was a great visit. I spent over a week (September 20- September 29) at a friend’s house; her family tried to convince us to move out there. LOL.

In other news, even though the infection has cleared up in my back, they still want me on infection meds. Also in other news, the rib pain that used to plague me before I had that wound issue start (after 2012 until the wound started,) is back. UGH. wish that would’ve stayed away.

Still no word from the geneticist about an appointment for my EDS- UGH!