Category: discipline

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I’m Backkk!!!!

jamiesjourney0591

Hey Everyone, Sorry for the “hiatus”. Things got chaotic but in a good way for the most part.

In March 2023, I returned to Baylor in Houston and got the results of my bloodwork – My “Chromosome Microdeletion” is on the Chromosome(s) 15.21.1-15.21.2 (its rather small) and very rare. There is no other deletion exactly like mine; there are some that are similar, but I am a medical anomaly (as if I didn’t know that already LMAO!)

Somewhat Sadly, In July 2023, My (now ex) fiance of 5 years and I broke up. There were many issues and TBH I think I mostly stuck around because I adored his family. I was sad about our relationship ending at first, but shortly after, his true colors of his personality showed up, but I am not going to air his dirty laundry on here- all I am going to say is what he did after we broke up (Despite trying to stay friends, I had to eventually cut him off for my mental health well being), but, he “shot himself in the foot” of any chances of us getting back together. I am happy to say however that his family still keeps in contact with me and his sister even still lets me see her kids who still refer to me as “aunt Jamie”.

In Other News, Around April of 2023 I got the vision of doing a “podcast” (Sugar Spice and Everything Nice- St Landry Parish) of Promoting Opelousas/St Landry Parish- events, hidden gems of stores/restaurants/etc, good news, etc. as all that makes the news is “bad news” and I don’t agree with that- why only see the bad when theres so much good also? (That’s another thing about my Ex: when I told him about him, he didn’t support it “Why you wanna do that? There barely is anything ever good that happens around here? It wont change anything,” meanwhile I always tried to support every idea he had, But, whatever.)

Shortly after I started my “podcast”, Parish President Jessie Bellard had reached out to me to attend a meeting of a board to help “Push/Promote St Landry Parish.” Shortly after that happened, Guns Down Power Up Founder Eric Williams reached out and asked if I’d be interested in becoming the new Vice President on the organization Board (I made a year as VP in July 2024). Finally, by going out to these events and networking with the community, I am meeting pillars and leaders in the community- other organizations, etc – that could help guide me towards accomplishing some of my biggest passions and dreams that I have had for a long time!

Finally, Guns Down Power Up, thanks to Superintendent Milton Batiste and Marshal Paul Mouton, got some classrooms at the old North Elementary school campus and we were able to do our first ever SUMMER CAMP, which was an amazing success, and I can already see it getting bigger and better with time. #TeamWorkMakestheDreamWork

While yes, my pain is unbearable sometimes and there are days it’s very hard and I just want to “give up,” All the blessings I see in my life, I can’t wait to see what other exciting things await. Now if only my body pains would go back to what they were in 2013-2017, and I’d be on cloud 9, but we can’t have it all.
I will just take one day at a time, that is all any of us can do.

God Bless Everyone!!! ❤

-Jamie

Adult, adulthood, Adulting, Chronic illness, Chronicillness, disabilities, disabled, Disableds, discipline, Ehlers Danlos Syndrome, EhlersDanlosSyndrome, Kyphosis, Life, medical, parents, Physical Disabilities, Scoliosis, Uncategorized, Zebra, Zebras

Food for thought…..

jamiesjourney0591

Food for thought… I had a diagnosis “Scoliosis “ and “Ehlers Danlos syndrome” since infancy. One pediatrician even told mom “you can just look at her and see she isn’t normal.” In reference to me.. a baby. An innocent little baby. Now my parents had 2 choices in raising me:

-Either prove society wrong and that my life had worth, treat me like they would like my older brother (who is “normal”) and raise me to be independent and self sufficient to the best of my abilities…

or

– and I’ve seen this with some families(not all)..give them a “pass”, no expectations of them, no discipline or correcting them. “Oh they have this diagnosis, they don’t understand “…blah blah blah excuse after excuse. “..no boo, they can understand “right and wrong,” but you just don’t wanna go through the “headache “ and time of teaching them. Or worse, you pity them and feel sorry for them;which will “cripple “ and “handicaps” them more. The world is rough and tough, it will not pity them, they need to be prepared.

My parents were tough but fair. I may not got namebrand clothes or expensive shoes, I didn’t get toys or candy every Time I went into store (unless I had my own allowance or money I saved or special occasion/holidays), I didn’t get cell phone till high school (16),I had some chores to do(whatever I could), I was held accountable for my grades and misbehavior. On the flipside, I never did without food, shelter, clothes, I had toys, I was taken on vacations,but there was lots of love and plenty of memories made. That’s wayyy important.

Life isn’t easy for anyone. But it’s up to that person to decide “do I wanna live like this? (Poverty, struggles, victim mentality “poor me,”) or do I pick myself up by my bootstraps and make better for myself.” Its all about perspectives, confidence, determination,and willpower.

Am I saying there aren’t obstacles in life that cause delays and blocks on your life road? No. Absolutely not. Never would I say that. And I’m not saying not to vent or fight for change. But it’s better to lead by example to be the change you wanna see. Be the spark for change; Be a Leader.

Turn to God’s light and goodness and he will bless you. God bless everyone.

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Life Journey: Jr High, Lowes Trip, Sassy teen, Angry dads; oh my!!

jamiesjourney0591

In Jr. High was the time I back-sassed my dad in Lowe’s. First, let me explain that I was grouchy because I didn’t want to be there, to begin with, but yet I was forced to go with him. We were at checkout and we had roach spray, along with many mouse/rat traps. The clerk said some statement about: “you must have a mouse problem?” I replied: “Oh, yes! A lot!” My dad replied: “Jamie, we don’t have a problem; just an occasional mouse or two from the field next door.” But of course, Jamie with the big blabbermouth didn’t shut up until dad growing frustrated told me “Jamie, Stop.” Well, I was mad that he cut me off from telling my stories, plus the fact he forced me to come anyway. Once dad had paid for the stuff, he asked me to carry the bag, to which I replied: “Why can’t you do it; I’m not your slave.” Oh, you should have seen the vein in his temple throb, and his face turn red; I knew I had crossed the line: “No daddy, I’m sorry; don’t whip me!” as loud as I could in Lowe’s, not realizing that if anyone heard him, they could report him for “child abuse,” when he was just disciplining his child. Boy, was my dad embarrassed and furious! I think if my child ever did that to me, I would have whipped them when we got in the car! I was so scared that I didn’t get into the front passenger seat, instead, I got into the backseat on the floorboard; trying to avoid my Dad’s wrath! (He still loves to hold this story over my head! LOL)