Wedding plan update…still gonna get married..

There’s been a mutual decision between David Piazza and I after all of us discussing things over with Mom, to push the wedding back another year. So it’ll be may 2021.. we haven’t gotten much done as far as planning and in Catholics churches, need to let church priests know 6 months ahead of event.. That’d be next month, plus we’ll be moving into my parents’ house the beginning of 2020. Plus this way, I’ll be over a year post-op and better able to plan and enjoy it. Sorry for any disappointments but tis life ❤️❤️❤️🤷 we feel this will be better in long run.

Rewrite the stars- Greatest Showman song- relates to my relationship with my fiance’

Last night, I was on my pain meds and as usual the drugs made me a sappy, hormonal, emotional wreck; especially when all they do is make me tired and don’t actually help my pain, and as tired as I am, I cannot get comfy enough to actually go to sleep- which causes me to become irritable, frustrated, and emotional. Warning: Below, is how I feel on those kinds of days. You’ve been warned.

Don’t get me wrong, I do absolutely love my fiance’ and most of the time I cannot absolutely at all fathom my life without him, but on my really bad pain days when I am cooped up in the house on pain meds and can’t stand my own life, I relate to Zendaya’s lyrics of the song.

He is so positive and confident about us, and I am like that girl (because of my age difference and looking like a kid, and my disability- the “mountains,” and “doors can’t walk through”) and what the world thinks. and just waiting for him to realize that it is hopeless and impossible for us to truly be happy together. I am always thinking “he didn’t sign on for all these issues: Me hurting all the time, me lashing out at him because I am hurting and frustrated; because I’m irritable.. How can I expect him to love me when I don’t even love myself?”

Maybe he’ll teach me a thing or two, or maybe if I have such idle time, pay attention to the negativity.
It’s a lot of self-esteem issues and idle time, pain meds causing depression, being bullied from a very young age (5 years old)- it’s hard to escape the “voices” of my past, but I am working hard on it because I do love him and I know he loves me.

The latest “Twisted Tale” in my journey called life; Surgery coming up fast!!!!

so the latest on my back: I saw dr. Kelly today. He is very optimistic. His plan is if my rods aren’t infected (we did labs), he says he will just open the incision scar where my rods are broken at, clean up my wound, and add in some “dominoes” and add in some extender rods.” It will be “Simple and sweet,” as he put it. 

:p The date is the same, August 14, but I need to be here by the 12th because I need to go to get my central line valve put in on the 13th. If he does what he wants, “simple and sweet,” he doesn’t think I will have as many complications like I did last time bc last time I had broken ribs and pneumonia from that which led to trach, blah blah blah…the framework already there, this is just some maintenance repair! LMAO. 
But whatever God’s will, will be done. 

Share my go fund me please!!! https://www.gofundme.com/jamie-has-broken-rods-and-other-problems-occurring

a nice morning surprise; despite Chronic Pain

I awoke this morning to find a bunch of attachments from my fiance’ family; it was of “Baby J-Bird” (Josephine)- my fiance’ 9 month old niece, playing with her new build-a-bear we did with them yesterday. She absolutely loves and adores it. Despite my chronic pain and need for relief and pain meds, and despite my Wound bleeding badly and acting up again, but that is Life and can’t do much about it.

I’d post the video I did of Serenity doing hers, but the site isn’t letting me.

In other news, I finally got my “official” engagement ring. We had one, but it wasn’t my official one that had my initials on the inside of it. Finally got it today 🙂 #SoHappy

Latest “Twist” in my life- Developing Osteoporosis

Today I had my monthly appointment with pain management doctor in Vidalia, Louisiana. At my last appointment, they did a bone density test; today they went over the results and it turns out I am developing Osteoporosis.  They did not say where it was developing and I was too in shock to ask. I have it written down for next month’s appointment. The doctors are starting me on Fosamax to increase my bone density and hopefully help to where I am not as “brittle” for surgery time in August. 

In other news, we have my fiance’s niece for a couple days at the apartment. 🙂 she is always a pretty good distraction for my pain. Tonight, we made tacos for supper 🙂 Another good bit of news is my fiance and I  will start praying the rosary together every night and gonna start going back to church on sundays  #RelationshipsWithGodlastLonger 🙂 

Passion for cooking: today’s meals

We had nothing left in the fridge and around noon I started to get hungry. I quickly seasoned up some chicken breasts and cut them into bite size pieces, put some oil in the skillet and grilled/sauteed some chicken despite already having planned a meal for supper with chicken- Baked Chicken Parmesan. Oh well. David didn’t complain and both meals came out good. I’ll probably defrost some ground meat to make tacos Tuesday night. 

Now, my joints ache and everything hurts, not just from being on my feet cooking, but also we have some rain predicted for later and that affects my body as well.  Just another average day in my life. 

one of those days…Update on A/c Leak.

Maintenance came out to fix the A/c issue, but the water soaked some of the bedroom carpets and even into the closet on David’s side. The maintenance people had us move stuff out of David’s side of the closet, and are gonna blow-dry the carpet and spray some type of chemical to prevent molding. 

I don’t know what God is trying to tell us/teach us, but, I could’ve really done without the moving stuff around workout today when I was already hurting, but oh well, That is life. It isn’t always as we expect/plan. 

I hope and pray that they are able to fix it to the point of no molding, and we are able to get our deposit back when we move out of the apartments.