peeks into my life dealing with everyday life and obstacles as well as obstacles of dealing with disabilities and accessibility obstacles, Chronic Pain due to broken spinal rods, living on pain medications, dealing with anxiety/depression, experiencing the newness of love, and fighting for my right to live and love my life in an ableist society.
A lot of people may have their own opinions on these issues, but I know for a fact that CPS and Family Courts are corrupt and that a lot of times it isn’t for “best interest of the child,” but its more a power play of which parent has more power/infleuence/ or money. “Money talks, Criminals walk.” I know people believe the “father’s rights,” and “Parental alienation” etc, but in my heart, I don’t feel that children can fake the levels of emotions in these videos. Maybe I am wrong, but I rather be wrong and do my part to prevent another “Gabriel Fernandez” case happening. In my heart, I think by age 5, children should have a say in who they want to live with. Again, maybe I am wrong. It may be parental alienation and vengeful parents getting back at exes and using the kids as pawns, I dont know, all I know is these heartfelt cries of these kids seem real and they heartbreaking.
please check out my video compliations of the cases:
So earlier today, I had my appointment with my GP who agreed to refer me to an EDS geneticist that I had found in New Orleans- Great news, right? Right.
later that evening, I was outside helping my fiance’ do some yard work around the backyard and he asked me to go get him some bottled water; should be a simple task, right? Wrong. It ended in me having to go to the ER.
I went into the house, got the bottle waters(1 for him, 1 for me), and started back out the backdoor: Now our backyard door has a drop about 1-2 ft and then the first step. I don’t know if I missed the step or if my ankles/legs decided to give out; it all happened so fast- All I know is next thing I know, I am losing my balance and falling forward and landing face-first onto the concrete sidewalk.
Landing forward, should spare my rods right? Hmm. well, I’ll get to that…
When I fell, I hit my legs and knees and felt like I couldn’t stand right away, I busted my head on the concrete and had a big gash and later a knot, scraped up my right wrist, and had landed on my left ring finger that had started to already swell.
I waited for a little while to see if the headache would subside and I’d feel better. No luck. So we went to the ER. They did a CT Scan (to look at my head to make sure no damage) and a Xray(to look at my rods and back).
The Drs said the finger wasn’t broken; it was a busted blood vessel and ice and rest should bring down the swelling. The CT revealed no signs of any damage or concussions. However, the Xrays were not as lucky: My rods that I just had fixed almost a year ago, from being broken previously, were broke once again! Now the rods could’ve been broken before this incident- After all, I was still taking pain medication on and off as needed and I had an experience months ago while still in the apartment where i had stood up and it felt like a popping shockwave down my back. The timing just really sucks, so now I have to call Dr. Kelly and tell him the bad news about my rods. I feel like I let everyone down again, but I did everything I was supposed to- I wasn’t straining, I wasn’t bending, I was being cautious,, I didn’t get on inflatables this time and I still end up with broken rods. I wonder if my EDS could be a contributing factor to the rods continually breaking? I suggested it to one of my fellow Scoliosis friends who is in a scoliosis group and said there was a girl who kept breaking her rods and getting infections and was later diagnosed as EDS and ended up having her rods removed, so it could be a contributing factor. Hmmm….I don’t know. Seems like I try to do everything right and then something still f** it up and I am back to being a disappointment. UGh. I hate these voices in my head and feeling like I am mentally unstable. Will things ever get easier?
just in case we lose the app because of Trumps talks of banning the app. (I really hope Microsoft is able to buy it.) I love some of the videos I made.
Tiktok is one of the few things that I can do to entertain myself on a pain day. I really hope it doesn’t go away.
Jamie's Twisted Journey 