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Life in Slideshows

I made more slideshows about my life in pictures. I added all my slideshows to a playlist on my youtube. 

Link to playlist: My Life Slideshows – YouTube

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Scoliosis Journey Vids

New videos on my youtube: A slideshow of my 2012 Halo Traction+ Surgeries in St Louis, Walking after surgery, and rambling on pain meds after surgeries.

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Heart Dr appointment and new medical vocabulary

Today was my cardiovascular appointment with my heart doctor and it seemed like a same-old same old- type appointment; which may be true for the doctor, but for me, as I have never really read over my discharge appointment summaries before really, I was shocked.

For some reason I decided to read my discharge summary papers once I got in the car, and according to the papers I had a few problems I was not aware of. I knew that they had said I had a valve that was being watched, but according to the papers, I have “acquired insufficency of aortic valve”, in addition to “non-rheumatic mitral regurgaitation,” as well as Sinus Tachycardia (I knew I had tachycardia but learned what type). I also have WPW (Wolf Parkinson white syndrome, which I knew about already and had a cardiac radiofrequency ablation for it in 2013.)

I scheduled a Echocardiogram for Jan. 15, 2021 at 7:15 a.m. and will get results on Jan 20, 2021 and will update with results when I get them.

But to see those new medical problems (even if they not new in my medical history, they were new for my discovery) were definitely scary and made me realize I need to maybe pay more attention to my medical information. It is my body, I need to be familiar with it.

Anyway, goodnight all.

Image may contain: text that says 'Problems 1. Acquired insufficiency of aortic valve 2. Non-rheumatic mitral regurgitation 3. Sinus tachycardia 4. WPW (Wolff-Parkinson-White syndrome)'
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Disability update- Scoliosis Update: St Louis check up appointment

 On September 22, 2020, I had my appointment with Dr. M Kelly at CAM Center in St Louis, Missouri. He didn’t seem too worried about the broken rod at this time. the rod is broke but it’s still got some support from other rods and such, we not doing anything at this time (if rod gets worse or something, then we’ll see our options. Not really wanting to go back in at this time because the wound I had previously s finally behaved and “quiet.” So he’s like “let the sleeping dog lie,” to which I translated “don’t poke the bear” and he agreed.The “rod pain.” Is not rod bc the broken rod is on other side of my back, but it’s probably “muscles” or nerve pain instead. Which thinking back after my surgery in 2012 I did have similar pain but this round feels worse than last time. Idk. Maybe my fall made it worse..idk. 🤷‍♀️🤷‍♀️🤷‍♀️ anyway that’s the update.

other than that it was a great visit. I spent over a week (September 20- September 29) at a friend’s house; her family tried to convince us to move out there. LOL.

In other news, even though the infection has cleared up in my back, they still want me on infection meds. Also in other news, the rib pain that used to plague me before I had that wound issue start (after 2012 until the wound started,) is back. UGH. wish that would’ve stayed away.

Still no word from the geneticist about an appointment for my EDS- UGH!

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disability journey: Broken rods – facing my parents and such…

 As we are aware, I had re-broke my spinal fusion rods and was dreading facing my parents about it. This weekend, my parents came in off the truck. As soon as they saw me, Dad asked “what happened to your forehead” because that was the first thing he noticed. “Well, you see, there was a incident in the backyard on the steps. I fell…and re-broke my rods.” They didn’t look happy, but didn’t say anything, later they mellowed out and we joked about it. Then I gave them some candy bars I had bought at the store on Thursday after the incident, before they came in, with the joke to David, “I’ll get their favorite candy bars so when I deliver the bad news about my rods, it will be less of a blow…Like…’look, I got yall favorite candy, oh by the way, my rods are re-broke. Oh just eat your candy bars before you reply.” hahaha. To which I recounted that story to them and they laughed. I am so lucky to have understanding and supportive parents with good senses of humor. 🙂 #Blessed. 

I also sent the Xrays to Dr. Kelly on friday through “snail mail” with post office saying it should be delivered/recieved on monday. So I will call monday to tell his office and hopefully by tuesday or wed, I will have some news on what Dr. Kelly had to say. I also hope I hear from the genetics doctor soon as well. 

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Disability Journey: Broken rods again..What does it mean?

As we know, my rods are broken once again, but until Dr. Kelly receives my Xrays from OGH and I hear back from him and go to my appointment in Septemeber, we do not know what will happen. Will I have another surgery? More than likely- I mean my rods can’t stay broken. What does that mean?  Well, more than likely it means another surgery, recovery all over again, push back college again, postpone the wedding again, having to raise money or apply for hardship case again since St Louis Barnes Jewish doesn’t take out of state Medicaid, and the talks of David and I starting a Food truck business will also be put on the backburner. 

I am tired of the rods breaking; this is the 2nd time! Maybe I should just put myself in a plastic bubble or “ground myself” permanently into a wheelchair and say “Fuck walking” – maybe I won’t injure myself, since I can’t seem to not be a klutz. I don’t know what the answer is. 

I am just dreading it. Dreading facing my parents about it, dreading facing doctor kelly about it, I know accidents happen, but I feel like I am a disappointment and let everyone down even though I did everything right this time: I didn’t get on inflatables again (I learned my lesson from last time), I was cautious when picking up on my niece or stuff, I was cautious and didn’t bend- instead I squatted or got on my hands and knees,) and yet, I still broke my rods. I wonder if my Ehlers Danlos has something to do with it? Hmm. Guess that’s a question for when I do see that EDS genetics doctor. 

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Beignet: Grooming incident and photo modeling

Yesterday, Wed March 18, 2020, while I was using the “dog shaver” to see about Beignet’s loose dog hair, she was more hyper than usual and wouldn’t keep still. Long story short, she moved while I was going down her back with it, and when she moved, I slipped and got the back of one of her legs- a small cut on her leg and bleeding a little. We went inside, I got bacitracin, gauze, bandaid, and medical tape and bandaged her up. I walked away to put the stuff away and come back to find she had already chewed halfway through the tape, gauze, and bandaid. 

Later that night, I decided to practice my photography skills and used Beignet as my model and uploaded them to her Instagram to try to build up her following and add to her content. I am trying to get her some brand deals; I am almost like those moms who push their kids into casting calls. ugh. Not good, but I can’t help it, she is just so cute and a pretty dog and so photogenic. 

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Beignet: Brushed, combed, and playtime!

Today, Beignet was itching and scratching alot so I decided to take her outside and give her a good brush/comb out. I also found one of those dog hair shaver things that she used to be scared of when she was a puppy; good news, she is no longer scared of it, and it got alot of her loose hair off. She’d probably look alot prettier if she had a bath, maybe David and I will bathe her this weekend. I think I will keep up with her daily grooming though, it seems to be helping her alot.

After an hour or two of grooming outside, we came back in and decided to play. She has so many toys that sometimes it is so hard for her to decide what toy she definitely wants and will start with one, then leave it alone after i throw it, to go find a different toy! HAHA.

Anyway, it was a pretty chill day, and I guess with the hysteria and panic surrounding CoronaVirus, I will have alot of time to just be at home and spend time with my wonderful furbaby.

BTW, she totally isn’t spoiled (rolls eyes)

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Beignet now on social media

my dog now has instagram (beignet_cormier)

Twitter(@BeignetCormier)

FB Page: Beignet’s Blingy Life

youtube channel: https://www.youtube.com/channel/UCItP4nxr5T4L7VFs6OKSKqg?view_as=subscriber

Blog page: Beignet’s bling life https://beignetsblinglife.blogspot.com/

FB Profile: https://www.facebook.com/beignet.cormier.33

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Beignet: Sweetest best dog in Louisiana- Youtube slideshow video