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Got the most devastating news today-May 2019

Just 11 days before my grandma’s birthday, my fiance’ had a missed call from my mom this morning so I called her back; she wanted him to tell me that my grandma(mommee) is in the hospital and it wasn’t looking good, that her kidneys were failing and they were debating on dialysis. Just wanting me to “prepare for the worst.”

My “Mommee” is my last remaining grandparent and after she passes, I will basically be a “grandparent orphan.” Never will she get to see me walk down the aisle for my wedding(which is a year away), never will she be able to see me become a parent, never will she be able to see me finish school and chase my dreams, or any other things I had dreamed about her seeing for my future.

I love you, Mommee. Please recover from this, but I also know that if you do pass, it is God’s will and you will be in a better place. No longer suffering with the dementia, confusion, and pains of this world; only the loved ones left behind are the ones who mourn and grieve the loss. ❤

Love

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AntiBullying Rant (youtube video, Posted 2018)

End bullying now!

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VBS SonTreasure Island Dance Youtube Video (Posted on youtube on 2019, but VBS Summer 2018)

The dance from Summer 2018- I did the best I could. I don’t have the best coordination, but the main purpose of the counselors doing the dance isn’t to “perfect,” but to help teach our class the dance moves and encourage participation, which it did. So mission accomplished.

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“heart” Poem- (old piece)

Red heart,

Symbol of love,

Fitting together

Like pieces of a puzzle.

Love,

Community, people, socialization

Family, friends, significant others,

Neighbors, simple strangers on the street.

People equal love and happiness,

Loneliness equals sadness, depression,

No heart equals no love,

Overwhelming dark black hole,

Sucking away any chance of happiness.

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A body like a rollercoaster poem-(old piece)

A Body Like a RollerCoaster:

               A body likes a rollercoaster

Lots of twists and turns,

A winding track,

Many different options to explore,

Many different twists of the curves,

Twisting one way,

 going up a giant incline,

Slowly climbing up, up, up, to the very top,

It can be quite a tiring experience; that long trek

Then the scary part, the drop!

You drop down,

going faster and faster,

gaining speed as you drop down the tracks

Another twist in the tracks,

 then a loop upside down,

You start screaming!

               With lots of ups and downs,

“Bumps, stumbles, and falls,”

“bruises and scars,”

Not just physically,

The “rider” (patient) can also be traumatically scarred too,

Turning life upside down,

Like loops on a rollercoaster,

Making the victim,

The patient, plagued with this disorder

The limiting disability known as Scoliosis,

 scream and cry,

tired and emotionally drained,

“Let me off now,

Before I die.”

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The last week-Stomach problems-May 2019

The last week or so, I been having stomach problems. First, my fiance’ niece was over here and any change in routine and my stomach routine goes out of wack (constipation). I was hurting more in my back and hips, lots of belching, bloating, nausea, decreased appetite, and gas; so I thought maybe it was due to constipation, however, once I did get back on my bathroom routine, I still had problems continue.

when I am hungry, I get nauseated, and once I eat, it chills out for a little while, unless I overeat, and then nausea comes back. I still have decreased appetite, craving more sweets, still belching a lot, still got a lot of bloating and gas, and at least my pain in my back and hips has returned to its normal-pain levels.

Yesterday and Today, it was BBQ lunch I had yesterday and then I also had red velvet cake today, so my stomach is really hurting and gurgling 😥

August cannot come fast enough. I think that is a lot of my issues- the broken rods, my Kyphosis getting worse again, putting pressure on my tummy. 😦

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Happy Birthday, Mom-May 2019

Happy Birthday, Mom! I love you! Thanks for giving me 28 years of amazing memories.

Mother(another old poem i wrote)

Mothers,

wise women beyond their years

sweet and loving,

hold them dear.

help you through times,

good or bad,

if you turn away,

they become sad.

         my mom is special to me

heart of gold

soul of passion to match

“I love you, ” i am told

               only because she loves me

does she want what is best

for her daughter,

angel, apple-joy of her life, to be happy

                   you cant beat the best

you cant beat the love of my mother

love so pure an great

you cant compare her to the rest 🙂 LOVE YOU MOM! ❤

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Latest in my “twisted Tales” Journey-May 2019

I received a letter in mail today from St Louis. No info about if I was approved for hardship assistance/Financial Assistance, probably will call about that, but the letter was to confirm my pre-op appointments. justin case, please pass around my gofundme page https://www.gofundme.com/jamie-has-broken-rods-and-other-problems-occurring

Tuesday July 16 at 10:45 a.m., I will have a meet with Dr. Kelly to discuss surgery and sign my consent paperwork. Also on July 16, at 1 p.m. I will be meeting with the Anesthesia Department to have my pre-op testing completed.

It’s getting more real! August is gonna come so quickly!!!

In other news, we have David’s niece, “Sky-baby,” for the week and also its the apartment complex’s resident appreciation week. We had ice cream and waffles today, tomorrow is trivia and Pizza, Wed. is breakfast in the morning while supplies lasts.  Thursday they are gonna pick up our trash from patios in the morning and afternoon they offering free car washes. Friday is the crawfish boil! I’m so excited to enjoy these events and even more we get to share these fun experiences with “Sky” ❤ we also gonna try to go treat her to Cajun Heartland State fair at Cajundome or we could go to Children’s museum, Girard park, a movie at theater, go show her the turtles and alligators at Cypress Lake at ULL; There is also the option of Go Kart Ranch or Bowling<3 And she loves swimming. 🙂 So just swimming and me doing spa-makeup and dress up, and board games with her, she already has fun 🙂

#AuntJamieandNieceBondingTime #ShelovesmeMorethanherUncle #ImtheFavorite LMAO. I love my future niece and she loves me. She doesn’t notice or care that I have a disability; all she sees is someone who likes to have fun and entertain her and isn’t as impatient with her as her uncle is. She sees someone who doesn’t mind acting like a child but will adult when they need to. ❤

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Happy Birthday, Dad! Youtube Video- May 2019

To My dad: For some fun times and those rare occasions when we don’t fight. You gave me my personality, blonde hair, sense of humor, and my ability to live as independently as possible; thanks for pushing me, despite having a disability.  Thanks for everything Dad. I love you.

I know I give my dad a lot of grief, but he has actually taught me some pretty cool skills. As a child, he would take me outside, and I’d watch him do wood-working things with the hammer, saw, etc. HE even let me work the saw sometimes! I practically grew up going to Lowe’s or JB Sandoz Hardware store, quite often! Another thing I remember doing often was when he’d be “on call” for work, and he’d take me with him; at his office there was this “magic dry erase board,” that would print whatever was written on it, and it could move to a different/clean board; I just was so fascinated by that board! We also went to Waffle House quite often for breakfasts and went eat at Deano’s Pizza a lot too; I still joke with mom, “We can’t go to Deano’s without Dad; that’s blasphemy!”

Another thing I remember doing with dad was the first time that he took me “crabbing”. Crabbing is where you go catch crabs, and no I don’t mean the STD; I mean, Crabs, the seafood.  We had to leave really early in the morning, so just like for Shriners trips, I would pack a bag the night before, and just change in the backseat. I remember we had ham sandwich supplies to eat lunch, and the darn seagulls were chasing me for my sandwich; finally, I just threw the sandwich and let them have it. I had so much fun, 10 years old, running on the docks to check the crab traps; getting all excited and jumping up and down, “DAD, There’re some crabs in this one!”

Another favorite memory with dad was when we’d go to go kart places; like the Kart Ranch in Lafayette. We’d ride go-karts, Dad always had me ride with him because we are both super competitive; I could trash talk the other people while he drove super-fast, making the hair blow in my face. While there, we also would do mini-golf and I always got a pink golf ball.

The funniest memory was when we were at my Aunt Sandra’s house in the country, somewhere in Texas. We went 4-wheeler riding and went fishing. I don’t mind the fishing, as long as I don’t have to touch them and they don’t flop around near me. I was scared of fish, for Pete’s sake! (What wasn’t I scared of as a kid?!)  Anyway, Dad had caught a fish, and it was on the back of the 4-wheeler and I was sitting on the 4-wheeler; the fish starts flopping closer to me, I scream! It’s funny now, but I was scared to death when it happened. Another memory was when we were riding 4-wheelers (ATV); Dad kept jumping the hills on them, and he lost his glasses in the fields after he had jumped one of the hills. I liked riding the 4wheelers: The wind in my hair, the thrill of jumping the hills; although the landing afterward, made my stomach jump into my throat!

Yes, Dad and I have a…Complicated relationship, but when we get along, it’s golden. I love him, even if he does work my nerves, and I do treasure these memories and things he’s done with me. I will never forget them because they are always in my heart, and I ask for some repeats now and again, like crabbing, which we should be going do again real soon; yay!