one of those days…Update on A/c Leak.

Maintenance came out to fix the A/c issue, but the water soaked some of the bedroom carpets and even into the closet on David’s side. The maintenance people had us move stuff out of David’s side of the closet, and are gonna blow-dry the carpet and spray some type of chemical to prevent molding. 

I don’t know what God is trying to tell us/teach us, but, I could’ve really done without the moving stuff around workout today when I was already hurting, but oh well, That is life. It isn’t always as we expect/plan. 

I hope and pray that they are able to fix it to the point of no molding, and we are able to get our deposit back when we move out of the apartments. 

The funeral.

I was able to read my “writing” I did for Mommie on the day I found out she died, today; however, toward the ending, I got choked up, and quickly finished, and ran out the room before the water-works started. I had a huge knot in my stomach all day and could barely eat: I forced myself to eat a little bit though to just not get sick.
At the church, Mom wrote and read a beautiful eulogy- I know where I got my writing talent from. It described my Mommie perfectly. It was at the same church and cemetry my Poppee- grandpa is buried.

In happier news, David and I like the church for our wedding next year (if all goes well with my surgery and recovery). Today was a hard memory in that church, time to add in a happy one 🙂 Plus, this way, Mommee and Poppee’s spirit don’t have to travel too far to be in that church when I walk down that aisle. 🙂 Another funny thing, my aunt Jan grabbed my fiance’ by the collar and basically threatened him, “If you hurt Jamie, you deal with me!” I think he knows if he ever hurts me, he’s gonna have a huge angry mob after him! LMAO.

another sleepless night; chronic pain and tears.

A bad storm passed through Louisiana this week so it has been quite a bit of sleepless nights for me lately and then add in the dreaded once a month bullshit us females have to deal with, adding in stress, anxiety, hormones, emotional roller coaster, all that (sarcastic tone) “fun.” Tonight, I tossed and turned for 2 hours while my fiance’ just lays next to me snoring; sure, I could wake him up and make him suffer with me, but that is selfish plus he works to provide for us, so I guess he needs the sleep more than I do, but it sure would be nice to be able to talk these things out instead of blogging them.

I have a mattress that can elevate the head, it helps with migraines and sometimes my upper back (then I gotta deal with my lower back and hips hurting), but tonight my upper back is hurting and I am not even gonna use the head-elevation because lately it has been making my fiance’ back hurt in the morning; which sent me down the dreaded “rabbit hole” of the uncertainty of a future together: What if I become bed-ridden, what if he has to help me with everything more than he does now? That isn’t what he signed on for! It isn’t fair to him. I know he made a commitment to me and he constantly reminds me of it anytime I start crying and freaking out about how much pain I am in and the fears that sends into me about how uncertain my life and future are; I just don’t want him to have regrets or resentments. I love him, I really do, but when these fears kick in, I go into flight mode and tend to push him away, thinking I am saving him from being stuck in a sucky future with me and my damn disability. How can I expect him to accept it and what it does to me, if I cant even accept it completely myself?

If there was a pill created to make me “normal,” like everyone else in society, I would take it! Even though I also feel like having my disability has made me a well-rounded, wise, empathetic, compassionate, supportive, loyal, passionate person. Does it make me a bad person? Why is it I can be a support system and cheerleader for others with disabilities but yet I cant even accept myself completely? Does it make me a hypocrite? Maybe its just the pain talking; well the pain and the damn devil. I need to really work on myself and loving myself for me; whole-y and completely. Maybe after my surgery to fix my rods, maybe my pain will be better, and I can start being happy again. One can only hope.

Found out more news on my grandmother. :'( Really not good.

A knot formed in the pit of my stomach. I know when hospice is called in, it is bad, but this just tore me up to the point where I am now debating whether I even want to go see her before she passes. I was talking to mom earlier today, talking about how if I could, I would have my wedding now so “Mommee” could be there for it, and she told me, “you haven’t seen her; she cannot open her eyes or communicate.” 

I remember when I went to see my other grandma on the day before she died; sedated, unresponsive, eyes closed, her tongue had a greenish pale color to it, I knew she wasn’t doing good and had a gut feeling that she wouldn’t make it. However, instead of remembering just the good times when she looked happy and healthy, a lot of times, that was the image that haunted me even after her passing. I don’t know if I can handle going through that again. 

At the same time, I don’t want any “regrets.” So I am so conflicted right now 😦 I wish this wasn’t happening. 

A body like a rollercoaster poem-(old piece)

A Body Like a RollerCoaster:

               A body likes a rollercoaster

Lots of twists and turns,

A winding track,

Many different options to explore,

Many different twists of the curves,

Twisting one way,

 going up a giant incline,

Slowly climbing up, up, up, to the very top,

It can be quite a tiring experience; that long trek

Then the scary part, the drop!

You drop down,

going faster and faster,

gaining speed as you drop down the tracks

Another twist in the tracks,

 then a loop upside down,

You start screaming!

               With lots of ups and downs,

“Bumps, stumbles, and falls,”

“bruises and scars,”

Not just physically,

The “rider” (patient) can also be traumatically scarred too,

Turning life upside down,

Like loops on a rollercoaster,

Making the victim,

The patient, plagued with this disorder

The limiting disability known as Scoliosis,

 scream and cry,

tired and emotionally drained,

“Let me off now,

Before I die.”