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Planning a Q and A video…with mom….Need questions!

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I am planning on doing a Q and A type video with mom for my youtube channel sometime this week. Is there anything yall would like to know?

Any questions about raising a child with disabilities?

Any questions about what I was like as a child?

Any questions about me in general?

Her thoughts/ feelings/opinions about raising a child with disabilities?

Her thoughts/feelings/opinions about society now a days? 

Anything…There are no Dumb questions.

#Medical, ADA, Adult, adulthood, Adulting, Autobiography, Child, Childhood, Childrens Hospitals, Chronic illness, Chronicillness, College, Confidence, Connective Tissue, ConnectiveTissue, Creativity, Deformity, Differently Abled, DifferentlyAbled, disabilities, disabled, Disableds, diseases, disorder, disorders, EDS, Ehlers Danlos, Ehlers Danlos Syndrome, EhlersDanlos, EhlersDanlosSyndrome, Family, Friends, Friendships, Halo Traction, HaloTraction, Handicaps, Happiness, Health, HealthCare, hospitals, illness, Joint Pain, JointPain, Joints, Joints Pain, Joy, KyphoScoliosis, Kyphosis, Life, Louisiana, Love, memoir, Originality, parenting, parents, Parents of Disabilities, Physical Disabilities, poems, poetry, rare, rare disabilities, rare disorders, rareDisabilities, rareDisorders, Relationship, Scoliosis, Shriners Hospitals, Shriners Hospitals for Children, Social Media, social networks, Special Needs, Spinal Deformity, Spinal Fusions, SpinalDeformity, SpinalFusions, Spine, Spoonie, Spoonies, story, support, Syndromes, Talent, UnBreakable, Uncategorized, Youtube, Zebra, Zebras

Life in Slideshows

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I made more slideshows about my life in pictures. I added all my slideshows to a playlist on my youtube. 

Link to playlist: My Life Slideshows – YouTube

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Scoliosis Journey Vids

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New videos on my youtube: A slideshow of my 2012 Halo Traction+ Surgeries in St Louis, Walking after surgery, and rambling on pain meds after surgeries.

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Heart Dr appointment and new medical vocabulary

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Today was my cardiovascular appointment with my heart doctor and it seemed like a same-old same old- type appointment; which may be true for the doctor, but for me, as I have never really read over my discharge appointment summaries before really, I was shocked.

For some reason I decided to read my discharge summary papers once I got in the car, and according to the papers I had a few problems I was not aware of. I knew that they had said I had a valve that was being watched, but according to the papers, I have “acquired insufficency of aortic valve”, in addition to “non-rheumatic mitral regurgaitation,” as well as Sinus Tachycardia (I knew I had tachycardia but learned what type). I also have WPW (Wolf Parkinson white syndrome, which I knew about already and had a cardiac radiofrequency ablation for it in 2013.)

I scheduled a Echocardiogram for Jan. 15, 2021 at 7:15 a.m. and will get results on Jan 20, 2021 and will update with results when I get them.

But to see those new medical problems (even if they not new in my medical history, they were new for my discovery) were definitely scary and made me realize I need to maybe pay more attention to my medical information. It is my body, I need to be familiar with it.

Anyway, goodnight all.

Image may contain: text that says 'Problems 1. Acquired insufficiency of aortic valve 2. Non-rheumatic mitral regurgitation 3. Sinus tachycardia 4. WPW (Wolff-Parkinson-White syndrome)'
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Errand in town ends in Disgust!

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I was so disgusted today! I went into Citi Trends in Opelousas and was looking for baby clothes for my fiance’s niece, and I passed a T shirt on a 4T hanger that had “Juicy” written on the shirt! Seriously?! FOR a 4T?! That is a 4 year old! What self respecting parent would put their child in that?! That is like a calling card for pedophiles or these “Minor-Attracted people” as they wanna be called now. UGH! I legit wanted to puke in my mouth. With all the child trafficking, child abducting, human trafficking stuff running rampant in today’s society now-a-days, they would put this trash out?! WTF. Rant over!

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Youtube: Music and fun

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 I have always loved music. I may not have a great singing voice or ability to dance good, but play a good song and get me with just family/friends (if people I dont know are around, I WILL NOT PUT MYSELF OUT THERE), I love to have fun. It gets me out of that “poor pitiful me, I hurt all the time,” Mood. 🙂 

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Family Court corruption cases, CPS corruptions: Stand with Sophie Long, Justice for Chase, Justice for Hazel, Justice for Sloane, etc.

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 A lot of people may have their own opinions on these issues, but I know for a fact that CPS and Family Courts are corrupt and that a lot of times it isn’t for “best interest of the child,” but its more a power play of which parent has more power/infleuence/ or money. “Money talks, Criminals walk.” I know people believe the “father’s rights,” and “Parental alienation” etc, but in my heart, I don’t feel that children can fake the levels of emotions in these videos. Maybe I am wrong, but I rather be wrong and do my part to prevent another “Gabriel Fernandez” case happening. 
In my heart, I think by age 5, children should have a say in who they want to live with. Again, maybe I am wrong. It may be parental alienation and vengeful parents getting back at exes and using the kids as pawns, I dont know, all I know is these heartfelt cries of these kids seem real and they heartbreaking.

please check out my video compliations of the cases: