I am planning on doing a Q and A type video with mom for my youtube channel sometime this week. Is there anything yall would like to know?
Any questions about raising a child with disabilities?
Any questions about what I was like as a child?
Any questions about me in general?
Her thoughts/ feelings/opinions about raising a child with disabilities?
Her thoughts/feelings/opinions about society now a days?
Anything…There are no Dumb questions.
Meet scoliosis girl. She’s a super hero who happens to have scoliosis, but she doesn’t let it stop her from fighting against bullying and discriminations. She rights the wrong! She kicks butt and takes names. Lol.
(And no, this isn’t my alter ego, although we do share similarities lol)
I may get back into art and make more disabled and special needs characters. May even compile stories for them and make a comic book or something. Just have to sit down and brainstorm and actually do it. #Representation
So around 3:15 p.m. on Saturday, March 8, 2020, I received an email from firstname.lastname@example.org saying I had gotten $250.00 from a Jeremy Fontenot. I found that strange considering I don’t know any Jeremy Fontenots and when I looked at details the email was addressed to email@example.com not my Jamie.firstname.lastname@example.org so why did it go to my gmail? Even stranger, the person wrote “for tickets” in the details for the transaction. What tickets? I wasn’t selling any tickets or anything. I was faced with a moral decision to make..”Do I keep the money even though I know it wasn’t intended for me even though I could really use it?” or “Do I do the right thing, email the person, tell them the mixup and send the money back?” I did what I would want someone to do if it was me, I emailed them and then returned the money to them, even though I really (really, really, really) wanted to keep it. I did however get something out of it; not monitary, but something much better- Pride in myself, and I got a compliment from the individual in an email, “Thank you so much. I really appreciate your kind heart in this situation. It could’ve gone in a negative direction, but because of you, it was very nice. This gives me one more example to tell of how there are great people in this world. I hope you have a fantastic day and blessings your way. By the way, I told my cousin that since yall emails are so close, I advised him to change it up a little so this confusion doesn’t happen again. Y’all already have the same name! LOL.” and I emailed back, telling him “LOL, Only difference really is I am female. I’ve been scammed out of money before, so I get it and I’m disabled so I guess I have a lot of empathy I guess, I dont know. Anyway thanks for the compliments. Would I liked $250 ,sure who wouldn’t? But Keeping it wouldn’t be right. Anyway God bless and If you would like to know more about my life and story, I have 2 blog pages and a youtube channel,” and gave him the links to them. He emailed back saying ” I will definitely look at your youtube and read about your story.” So I possibly got a new online follower out of it 🙂
Today was not great of a day except for one little event during the middle of the day. I had gotten a ticket from Build-a-bear for the “Pay your age,” event and was able to take my “future nieces” (older one being 9 years old and the baby, 9 months.) However, earlier that day was not great.
It started by my 9-year-old “future niece,” going to get the mail at my apartment mailbox; I got a letter from St Louis billing department saying that I was “denied,” hardship assistance and didn’t meet the national poverty requirement (how is not having health insurance besides Louisiana Medicaid, and only living on SSI and food stamps, not poverty?) – side note: called and talked to someone and got it straightened out, after I had already had my anxiety panic attack because “I need this surgery but I don’t wanna go into debt and cause my family and friends to go into debt for it.” However, I had to put that anxiety attack away to go enjoy the build-a-bear event with my fiance’, his sister, her husband, and the two children.
The older sister got a “Siamese looking” cat that she named Melody and their mom picked out an adorable bear and put in a “giggle sound,” that made my 9-month-old “future niece,” smile at; we named the bear Giggles. We probably spent more than we wanted to- because if we’d done just the stuffies with no sounds or accessories, it’d have only been $10, but we got each a sound (Melody had a cat sound and the Giggles had the giggle sound effect) so add in $9 more dollars, and then each got one accessory- the cat got a purse, and I don’t remember what the baby got for hers.) The total was $31 something, so $31-$19= the two accessories costing $12 together so about $5 or $6 each. We covered about $10-15 each. It was worth it. I got to forget my anxiety and play with my “future nieces” especially the cute baby. LOL. I love them both, but adorable babies (when not crying and screaming) seem to make the world go right and make you forget your stress, whereas an older child who may not be able to entertain herself that well, may stress you more.)
After Build-a-bear, we went to eat at Cici’s pizza buffet. It was okay. I watched them feed the baby pieces of brownie and how she made that adorable smile at the taste of the chocolatey goodness, and my 9-year-old “future niece,” wanted me to sit by her. She tells me all the time she loves me, she constantly hugs me and wants my attention. She doesn’t seek that from her uncle; she’s even gone as far as to tell the family, “If DJ and Jamie break up, can we keep Jamie instead?” to which the family always corrects her, “aunty Jamie,” and I’m just thinking “don’t force her to call me something if it doesn’t feel natural to her. she doesn’t call DJ, “Uncle DJ,” LOL.
After Cici’s pizza buffet, we departed ways; they were going see a Movie at the theater where my fiance’ brother in law worked at; I think it was only so the 9-year-old wouldn’t beg to stay longer with me and her uncle at the apartment complex, because at the Build-a-bear thing, when we were leaving, she kept saying, “I wish I didn’t have to go home. I wanna stay longer with yall.” Which broke my heart having to be stern and tell her “no,” because she needed to get back and do her Homeschool SchoolWork and plus I didn’t feel that I could entertain her properly: I was still stressing about that letter, in the back of my mind. I told her, we’d try to get her again before I have my surgery in August.
When I got home, I finally had gotten in touch with someone in billing to discuss the letter about being “denied,” financial assistance. They explained that despite it being out of state Medicaid, they were still going to try to file with them, so currently, my balance showed $0.00. The department explained that if Medicaid denies the claim and if I get another bill, just to call them back and explain how I got another bill, and to reprocess my application for financial assistance. So all that anxiety and worry and my panic attack, were basically for nothing because I am not completely “denied,” just denied if Medicaid accepts the claim. I hate how they word the letters, it makes worry creep in. Mom said it was a lesson I need to learn because if I want a family, I can’t be freaking out like that all the time. She also explained how I am not alone in this “battle,” for my obstacles and stuff with my disabilities, I have family, friends, David, his family, etc. But overall that it is the devil playing with me and doesn’t want me to trust in God my father and savior. I need to tell him, “be gone, Satan. My God, my father, loves me and I am wonderfully made for a purpose. He has led me this far for a reason.”
I will try to do better to trust in my God and savior, my loving father, my almighty creator. Amen.
Also when I got home, it started raining so of course, my back started hurting, so I took a 3-hour nap on Pain meds. After waking up, my stomach decided to reject the pizza (I am guessing it was the pizza: my abdomen was swollen, I was bloated and cramping so bad that it sent pain into my sides, my sides of my abdomen were sensitive to touch, and the really bad cramps left me short of breath. It is slowly getting relief after Tums and Pepto Bismol and just time.
Sometimes I wish my life was easy, but God never promised an easy life- Thank you, Adam and Eve, for original sin messing everything up; if they wouldn’t have given in to the serpent’s temptations, we’d all be happy and carefree, running around butt- naked in the Garden of Eden and not knowing any pain or difference. No bullying, no stress, no strife. *Sigh* Paradise lost. However, we are not alone, Jesus, God’s only son, had to die on the cross for crimes he didn’t commit. He suffered, why should we be any better than him and not have to suffer? the answer is, we shouldn’t. Anyway, I am rambling now. Goodnight, God Bless, and try to find the silver lining 🙂
Maintenance came out to fix the A/c issue, but the water soaked some of the bedroom carpets and even into the closet on David’s side. The maintenance people had us move stuff out of David’s side of the closet, and are gonna blow-dry the carpet and spray some type of chemical to prevent molding.
I don’t know what God is trying to tell us/teach us, but, I could’ve really done without the moving stuff around workout today when I was already hurting, but oh well, That is life. It isn’t always as we expect/plan.
I hope and pray that they are able to fix it to the point of no molding, and we are able to get our deposit back when we move out of the apartments.
My grandmother, Ruby “mommie” Cormier died on Sunday, June 9, 2019; one day before her 89th birthday. I took it hard at first because I had been wanting to do a Youtube tag video with her, but I kept hurting a lot and couldn’t get out there to do it with her, and now I can’t do it because she is gone. I was also upset, because I had always planned for her to be present at my future wedding, when I got all my college degrees, to see me start my own career and chase my dreams, and maybe even eventually see me start a family; well now, she won’t be around for any of those events, not physically anyway. I came to realize though, she is in a better place, she is no longer hurting or suffering from dementia or diabetes. She could truly start living a fun life again.
Yesterday, Monday, June 10, 2019, in honor of her birthday, a lot of the family went out to eat at Pizza Village (one place she loved to eat), Mom made a chocolate cake, and we shared lots of memories, laughter, and of course cake. We even sang “Happy Birthday,” and the other patrons of the restaurant probably thought we were a bunch of weirdos. The younger kids, her great-grand kids, wanted to do a balloon release and so we “sent the balloons up to heaven.”
Today, Tuesday, June 11, 2019, the “wake,” at the funeral home was from 4-8 pm. with a rosary at 5 p.m. It really wasn’t that hard on me today; sure, I got a little choked up during the rosary, but other than that, Again, we shared lots of memories and laughter between families and friends. My younger cousin, Hadley, (4 years old) kept “arresting” my dad and putting him in “han-cuffs.” Adorable kids are always a good distraction from the pain of grieving.
Me: Hadley, you arresting uncle ronald?
Me: you know thats my dad, right?
HK: *Looked worried I was gonna tell her to leave him alone*
Me: Good Job, Get him. Give me high-five!
she just giggled and gave me “five”
(She’s definitely come a long way since Easter two years ago when she would run away from me! lol)
More than likely tomorrow will be the real challenge when they close that casket and we have to leave her. I am gonna try to read what I wrote the other day in dedication to her when she first died…I might get choked up but I will try to do it.
I found an angel pin that I put on her to be buried with, and a picture of me, her, and david from Christmas 2017 when David and I first started dating. Also being buried is a toy cat that supposed to represent “Socks” (her cat she had before she went in the nursing home), and some pictures of her, Hadley, and Hadley’s older brother “Braylon”. Those kids are young, but I hope they know how much their great-grandmother loved them as much as they loved her. <3<3
anyway, good night. Thoughts and prayers with the family for tomorrow is appreciated.
Yesterday, Mom called me and told me that “If I want to go say my final goodbyes to Mommie, I might want to go as soon as I could.” David and I had plans already, but I had an emotional breakdown while at our plans, so we dropped everything and went to see Mommie. She was sedated on morphine, every so often it seemed like her chest would ‘jump’ as if struggling to breathe, her eyes were closed, but they told me she could hear me. I told her “I love you, Mommie. Dad, Mom, Jared, and I love you. David, my fiance loves you.” There were other people in the room, so I just held her hand and thought the other things I wanted to tell her, hoping she could feel them telepathically. As I talked to her and said my silent prayers, holding her hand, she squeezed mine a little bit once or twice. David and I also visited with my aunts in the room about family things to kind of ease the tension a little bit. Mom texted me this morning and told me, Mommie had passed away this morning. Mom and my aunt seem to think, maybe she was holding on for me. maybe she was. I don’t know.
After I found out about her death though, I was inspired to write something up; I may share it at the funeral, I may not. I will try, but I may breakdown half-way through it. Only one way to know for sure: Do it in fear. Fortitude! Only for you, Mommie. Love you.
We are here to remember the life of Ruby “Mommie” Cormier; Sister, Mother, Grandmother, great-grandmother, friend, and child of God. We are also here to remember the love we all shared for her and the fond memories we shared with her: those good memories are what will get us through this tough period as we say our final goodbyes to her Earthly form, but it is only a temporary goodbye; we all hope and pray to see her again when we leave this Earthly life.
My earliest memories of Mommie was about 2 or 3 years old, going almost every weekend when they lived in Lewisburg, Louisiana; she always had a Sippy cup of coffee milk waiting for me, and when Poppee would call me the pet name “Sack of Shit,” (which question, how is that a pet name; but go figure with those Cormiers) Mommie would always argue, “No poppee, she is a sack of sugar.”
I remember her and my nanny (Martha) accompanying us a few times to Shreveport when I was at Shriners Hospital for dr. appointments. When she moved to the apartments in Lafayette, I remember walking with her to the mailbox and along the way, she would “show me off,” to her neighbors and be all “This is my youngest granddaughter. She’s my baby.” She would brag to anyone who would listen about that time when I was just an infant, “I couldn’t hold my bottle with my arms, so I held them with my feet.” As I got older, I got so “sick” of hearing that story and a little embarrassed when she would tell it to my friends, but I also knew that she was proud of me and had a deep love for me.
Mommie enjoyed many things: going to church, going to a rosary, doing bingo, going to the casino- for her 80th birthday, Mom even made her a cake that looked like a slot machine! She also loved her coffee and beignets. She sure enjoyed when we would take her to coffee depot in Scott, Louisiana for beignets and coffee; That was one of her “elements,” Coffee, beignets, and socializing with family and the waitresses at the restaurant who happened to know the family.
In 2012, when in St. Louis for Halo Traction, she came to spend a week with me. The first night she got turned around and I ended up having to walk her downstairs, to the parent housing side of the hospital. The whole walk she kept apologizing, but I was all “Mommie, it’s okay. The hospital is pretty confusing. I just learned it because I been here for almost 3 months.”
During 2016, when Trump was running election, which she was all “go trump,” and don’t get me wrong, I am not anti-Trump, I may not agree with everything he does but he is human, but anyway, we were talking and she must’ve just remembered Poppee’s last few good years because I heard stories in his younger days, he wasn’t that great of a person, but Mommee was all “If Poppee was still alive, he’d make a good president.” I swear, I nearly choked on my drink and did a spit-take when she said that. I think that was my first clue that she was starting to get dementia a little bit. But it was kind of good that she only remembered the good side of him too. She didn’t hold onto anger and hurt from the bad years. Or maybe she just forgave him, I don’t know. If it was just her forgiveness of all the hurt he had caused her in the past, then that is proof of the good person she was and I am almost definite she got her angel wings.
She also took in others besides her family; she took in Mom’s family- we often took her to family get-togethers at Moms family- she loved all the little kids and would love on them. She took in my friends as if her own grandkids and when they called her, “Mrs. Cormier,” she would correct them “No, it’s Mommie.” She would sit and have coffee with neighbors at her apartment complex, even those that had slight mental disabilities (one guy in particular, which I cannot remember his name at the moment.) She was also a huge animal lover, as proof of her playing with my dogs when she would come to visit, and she loved her cat, Socks; until Mommie had to go into the nursing home and we had to re-home Socks. She even took in my (now ex-boyfriend) when we were dating, and she even accepted my now-fiance’ David, who she loved to give lots of kisses on the cheek to, and he loved them back. She was a very sweet, loving lady, but boy if you got on her “shit list,” look out, she stood her ground. I guess that’s where I got that from! HAHA!
She was just an overall loving person and genuinely very happy until dementia started in and it affected her mood and perspective at times, but before dementia, she was a great model of what we should strive to live our lives as.
Sure, I had plans for her to be at future events: when I got married, got my bachelors/masters/ or whatever other college degrees, see me start my own career and chase my dreams, possibly see me have a family of my own; but sadly, life is never promised to pan out how we want, and sure, I will miss her being in attendance physically at these major events, but she will always be there in spirit and in my heart.
Bright side is I now have another angel, looking out for me. Love you, Mommie.